I was disagnosed with Hashtimotos in 1998, B12 deficiency in 2001 and Sjorgren's in 2006. I have been treated for about 14 years now on combo T3/T4 by my endo - and other than sinus problems and the menopause - I have been pretty darn well .... until May 2015. Nothing I can identify has changed but I have had a return of all the horrid symptoms I had when I was first introduced to thryoxine all those years ago - night 'attacks' when it feels like my thyroid is vibrating, horrendous fitful and unrefreshing sleep, golf ball in my throat, puffy eyes - the list goes on & on. I was treated in 1998 like I was 'nuts' upon reporting these symptoms - only to find through very recent research that there are other hypothyroid individuals like me who had terrible trouble being introduced to thyroxine (in the end I had to start on 12.5mcg every other day until it eventually built up to the required dose) and awful symtoms of both hypo and hyper and these dreaded night time thyroiditis attacks (Dr S Langer's book). I cannot tell you now 'relieved' I was to read about them as I now know it's not just me! I am devasated to be back where I was - no one more shocked than me - but I am struggling to know where to go and what to do - my endo took more blood tests in May - told me they were Ok - to go on holiday and relax and go back for a follow up in November! I am going to my GP tomorrow as I feel absolutely terrible and want to get sorted - maybe more bloodtests - and to go about it the right way to get the GP to listen to and treat my symptoms as well - maybe even isolate the cause. I just improved over time last time - so don't know the cause then or why this is happening to me now after 14/15 years. I reduced T3 intake straight away in May - but the problems persist and if anything are worse now. I actually feel cold and have hypo symptoms and a fuzzy head, especially as the day goes on - and yet I seem to have the hyper or at least hyper sensitive issues I had when thyroxine was intrduced to me in the late 90s!
Any and all advice would be greatly appreciated - first time around in 1998 I didn't consult a forum at all - but it was through advice from a forum that my own B12 deficiency became obvious - so I know the power of like-minded people with similar issues banding together. Thank you