Hi there - hope you are all winning the battle with your illness problems. Once again i need advice. I was told that i am B12 and vitD deficient a few weeks ago - well i was given one B12 injection on the 22nd July and i have not had any more since although i should be having them every other day - but i keep ringing the surgery to find out when i will start getting them i am told my doctor will ring me - to date she has not done so - i was on the phone for nearly two hours today as they do not answer the phone due to high volume of calls - so they say - finally i got through to them and they arranged for another doctor to ring me - he did about an hour later and he was very rude and told me my doctor had been trying to contact me - i said that i had been indoors waiting for the call from my doctor but all she done was send a voicemail which she sent at nearly ten o'clock at night when i was asleep and another one the next day saying she would ring me on Wednesday 19th August - i have tried PALS for help and am waiting for an appointment with my MP - but i feel so ill and all i do is sleep - i live alone and get very scared when i get palpitations and breathlessness also my voice keeps going very deep and my chest gets tight and painful - they have got me on three inhalers as they say i am asthmatic and have POCD - i do not think i have it is them not wanting to admit to what is really wrong with me. Please see on replies i did an update a few days ago - i am not too brilliant with computers. Should i inject myself and buy my own B12 or should i just take tablets or spray for it - as i cannot take anymore of what the doctors are dishing out to me. Thank you all for your help. God bless.
B12 injections.: Hi there - hope you are all... - Thyroid UK
B12 injections.
Hi, that all sounds awful. Have you joined the Pernicious Anaemia forum? They are the experts on B12 and I think they would help you best, though of course there are a lot of people here with PA as well as hypo. I would just copy everything you have said above on a PA forum post, if you haven't already done that.
Thank you for your comment. I think i have had enough now of doctors and consultants lying to me - even one nurse told me in A&E that the doctor was lying to me - i only have one kidney and the cat scan dye caused it to collapse as they should have given me a special tablet before injecting me with it and when i told them that they agreed and said sorry - i told them that they should read up on what is wrong with patients - but do they - no. I wish you good health and thank you. God bless. PS - i will try the PA group again and see if i get more info this time.
I'm so sorry - how dreadful for you - having got as far as them agreeing to injections too.
You could contact the PAS - I'm told they are very helpful and the will often intervene with GP on your behalf.
I really hope you get help soon.
pernicious-anaemia-soci... Head office: 01656 769 717
The joining fee is £20 but they have access to library, info, guidelines, etc.
Sally Pacholok in her book, 'Could it be B12' recommends covering all bases with injections and supplements. I supplement with Jarrows Methylcobalamin 5000 mcg sublingually (Good reviews on Amazon for neurological symptoms).
Your definite neurological symptoms, means you should be treated according to the BNF and UKNEQAS guidelines below until no further improvement and, at the, very least, every two months.
Extract from the BCSH guidelines:
" The BNF advises that patients presenting with neurological symptoms should receive 1000 ug i.m. on alternate days until there is no further improvement".
The link below gives info and advice on writing to your GP and the excellent film explains why it is essential to treat quickly and adequately as there is a short window of opportunity before neurological symptoms become irreversible. Putting the guidelines in writing could be effective, as I'm told one of their biggest fears is being sued.
ukneqas-haematinics.org.uk/... :
b12deficiency.info/b12-writ....
cmim.org/pdf2014/funcion.ph...
The above UK research document is supported by many research papers and has a useful summary if GP won't read full document, It also tells your GP that, once b12 treatment is started, the test results don't mean anything and blood levels are not reflective of how effective the treatment is - it is the clinical condition of the patient that matters....
Lots of advice on getting B12 to self inject successfully on PAS site if all else fails.
Hi there - thankyou all for the replies - i will be following up on the advice given. I have my brothers funeral today so i am just leaving a quick message and to say how much i appreciate all your help. God bless you all.
Thyroid Results frustration
low B12/ fatigue 
T3 levels 4.4
Serum b12 levels. 
