Liothyronine help/Hashimotos: I went to see my... - Thyroid UK

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Liothyronine help/Hashimotos

saffiepurple profile image
4 Replies

I went to see my Endocrinologist last week and he asked me whether I had purchased the Liothyronine he had given me a prescription for three months ago. I told him that I hadn't because I couldn't afford it so he gave me a prescription for 25mg because he said they were cheaper.

After spending an hour on the phone I finally decided my Sainsburys pharmacy was the cheapest at £148.00 so I ordered them. When I read the box, although it was in French, I discovered that they should not be used if you have a wheat intolerance, which I have.

I am going to phone the pharmacy today, but I don't think they are going to do anything as the prescription didn't say Cytomel (which I believe is the right one for me). They gave me Cynomel.

Can anyone tell me if they have taken these tablets with a wheat intolerance as I think I am going to be stuck with them!

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saffiepurple
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Clutter profile image
Clutter

Saffiepurple, if corn starch is one of the excipients it is gluten-free.

saffiepurple profile image
saffiepurple in reply to Clutter

Hi Clutter, unfortunately it is wheat flour

Clutter profile image
Clutter in reply to saffiepurple

Saffiepurple, If the pharmacy won't accept the T3 back why not try half a tablet for a couple of days to see how you tolerate it.

You can use your prescription to buy T3 from Thybon Henning in this link thyroiduk.org.uk/tuk/treatm... and from goldpharma.sc/

Post a new question asking for T3 sources in Europe and USA where you can use a private prescripton.

donna8077 profile image
donna8077

If you are wheat intolerant I wouldn't just try it. I had a terrible time taking Tiromel because of the excipients. More than six days with terrible reflux that kept me awake at night. I also experienced a feeling of nausea the whole time I took it.

By the time you test to see how you tolerate it you may well make yourself quite ill. I did and I regret even trying it just on the grounds buying an option that had better ingredients felt more expensive. In the long run it will make you really ill.

And yes, I worry about getting the right brand for myself because now without T3 I think I would be in a pretty poor state.

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