No medication for two days...: Hi, I've been... - Thyroid UK

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No medication for two days...

Denise133 profile image
14 Replies

Hi, I've been stuck in hospital with my daughter since Friday and unable to leave her side. I'm pleased to say we are being discharged today and I can't wait to have a shower and sleep! (She had kidney stones, bless her).

However, what I'm worried about now is that I haven't taken my medication (75mg Levo) since Friday. I've been on 100mg for 5 weeks after diagnosis and then docs said to reduce to 75mg last week. My throat is sore & voice hoarse and I feel as though I have swelling in my neck , which started when doc reduced earlier last week.

Could anyone advise if I should take 75mg when I get home, which may not be until this evening or leave that and start again in the morning? The neck issue is new, so not sure if I should make docs aware of this too?

Hope somebody can advise & thank you in advance..

Take care all x

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Denise133 profile image
Denise133
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14 Replies
Denise133 profile image
Denise133

Ps.... I also have thrush and a mouth full of ulcers 😟 x

Marz profile image
Marz

Sorry to read about your daughter - hope she is soon fully recovered.

Do you have the results that gave your GP the impression you needed a reduction in your dose ? Did they test TSH - FT4 and FT3 ? If not then I do not know how they knew you needed your dose reducing....

As you have re-started with symptoms - it does sound as if it was not the correct thing to do. You could take your dose before bed as long as you have not eaten for two hours. T4 is a storage hormone and stays in the system for some time so you could continue tomorrow in your usual way....

Denise133 profile image
Denise133 in reply to Marz

healthunlocked.com/thyroidu......?

Hi Marz, thanks for your reply. I attached, above my post with all results in (hopefully!).. 😊

Marz profile image
Marz in reply to Denise133

Your Doc obviously reduced your dose as he thought you were over medicated due to your High FT4. Without the FT3 test this is difficult to prove - so he/she is just guessing. With Hashimotos it is quite common for people to have a problem converting the storage hormone T4 into the Active hormone T3.

I would follow Clutters advice in your previous post/thread.

Denise133 profile image
Denise133 in reply to Marz

Hi Marz, thank you for your reply. Clutters advice has proven invaluable too, so I'm keeping up with that too!

Thanks & best wishes,

X

Clutter profile image
Clutter

Denise, you can take 3 x 75mcg tonight and 1 x 75mcg tomorrow to catch up your mixed doses or 2 x 75mcg today and tomorrow. Patients suspected of non-compliance have taken 7 days dose at one time in the doctor's surgery to prove compliance.

in reply to Clutter

Gosh. Amazing.

Flower007

Denise133 profile image
Denise133 in reply to Clutter

Hi clutter, I took 75mg last night & just taken same again. Not sure what you mean by patients taking 7 days worth in GP to ensure compliance..?

Thanks

Clutter profile image
Clutter in reply to Denise133

Denise, Pointing out that it's okay to take 7 doses in one. Patients who doctors suspect don't take their Levothyroxine regularly have been asked to take 7 doses in front of the doctor to ensure it is taken.

Denise133 profile image
Denise133 in reply to Clutter

Oh I see. Thanks for that x

ScotsLassLondon profile image
ScotsLassLondon

Can I ask - did you not take it because you couldn't leave to go home? If this happens again (hopefully not) - you should ask the hospital to prescribe you your medication. I'm pretty sure they would give you it.

They have a duty of care for you too.

Denise133 profile image
Denise133 in reply to ScotsLassLondon

Yes, I took my daughter to GP Friday and she was admitted to hospital straight away. I had nothing with me, tablets, clothes, toothbrush! I asked a nurse but they said it wasn't possible.

I've learned from this to carry spare tablets with me at all times from now on.

Just feel awful today, but resting & hope to be back on track soon.

Thanks x

ScotsLassLondon profile image
ScotsLassLondon

That's outrageous! I think you should complain. I really do. X

Knotty profile image
Knotty

The PIL with my 50mcg levo , under the heading "If you take more than you should" includes:

"If you . . . swallow a lot of the tablets at the same time . . . contact your nearest hospital casualty department or tell your doctor immediately" and provides information about symptoms of an overdose." (No indication of what constitutes "a lot".)

Under the heading of "If you forget to take the tablets", the PIL says:

"Do not take a double dose to make up for a forgotten dose. If you forget to take a dose take it as soon as you remember it and then take the next dose at the right time."

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