Issues with taking thyroid mads : I've been on... - Thyroid UK

Thyroid UK

137,783 members161,594 posts

Issues with taking thyroid mads

Penni2016 profile image
11 Replies

I've been on 100mg of Levo since 2011 over the last 8 weeks or so maybe Longer I haven't been taking my meds half the time I forget to take them I've noticed that when I don't take them I lose weight I've lost a stone in 4 weeks my cycle has changed in a good way ... But when I do take my

Meds I'm still so tired and sleeping in the day and that's not me. Any advice would be grate I've been docs and told them that I don't think the meds are working but they say there is nothing els they can give me

Written by
Penni2016 profile image
Penni2016
To view profiles and participate in discussions please or .
Read more about...
11 Replies
Heloise profile image
Heloise

Hi Penni, rather unusual I would say. Do you have any test results you could post? Is there anything else you have changed....perhaps coming off birth control pills or some other medication? It would be total guesswork and I don't think you should stop entirely but maybe you have come up with something....intermittent dosing urges the gland to renew itself??? teehee

Penni2016 profile image
Penni2016 in reply to Heloise

I had some

Bloods done a few weeks ago I waiting for the results I'm

Not on and sort of contraception has my cycle ranges from 30 days to 60 day it's been like that for 3 years

jacrjacr profile image
jacrjacr

when were you diagnosed, what age and were your hormones fluctuating then etc....and has your health changed in any way.....what were your labs then...sometimes people are misdiagnosed when something else is going on but without initial test and more info, hard to say what It could be but my forgetfulness is worse when I am undermedicated or hormones are out of balance.....I agree with heloise

Penni2016 profile image
Penni2016 in reply to jacrjacr

I was diagnosed in 2012 nearly. Year after I had my 3rd child I have wandered weather I was missed diagnosed I'm tired all the time I feel sick everyday I'm forgetting things but since stopping the meds my cycle has gone to 26 days this time instead of the every 30 to 60 days it was while I was taking the meds I had some

Bloods done few weeks ago just waiting on results I'm

Brushing far to easy not a clue how I'm getting the bruises

Heloise profile image
Heloise in reply to Penni2016

You might be anemic which would make you feel better without the T4 trying to work.....since it won't. Did you get other tests than thyroid? I would urge all the iron tests and b12. Tell your doctor about the bruising as soon as you can. Check out the proper results in this list.

stopthethyroidmadness.com/l...

Penni2016 profile image
Penni2016 in reply to Heloise

My doctor has done bloods for everything

Penni2016 profile image
Penni2016 in reply to jacrjacr

I was 29 when I was diagnosed

greygoose profile image
greygoose

Do you have Hashi's? You could be on a Hashi's swing. It would be really helpful is you posted labs with your question. :)

Penni2016 profile image
Penni2016 in reply to greygoose

I'm waiting on my results

jacrjacr profile image
jacrjacr in reply to Penni2016

for your own body to work properly you have to have enough serum iron, selenium, and b vitamins, vit d, etc and hormones in balance . Certain vitamins are needed to convert t4 to t3 and t3 is what your body uses. It is also not uncommon for women after childbirth to be diagnosed with hypothyroidism and sometimes it is temporary hence after childbirth your progesterone drop fast and you are out of balance and is also why you can lose hair at the same time..... I was just at the dentist office and a younger woman told me this happened to her and she was on it for 8 years and a dr told her I don't think you are hypo and took her off meds slowly and she is okay for years now....that is rare but plausible. if yout deficient in vit d3, you will drag yourself around the house.....if you are low in iron you will feel like you have a shortness of breath or crave ice, if you are low in vit d or b vitamins or magnesium you will have muscle aches....the list goes on.....all cause fatigue if off....so a very good blood test seeing where you are in or out of balance very helpful...also were you ever tested for the autoimmune of hypo...? personally my test have always come back negative but I was diagnosed at menopause and all my hormones vitamins etc and adrenals were off and on test I was also not diagnosed correctly and given the right protocol bec so many PA's acting as drs now in offices misdiagnosing.....my adrenals and deficiencies should have been addressed first b4 thyroid meds...years later I still wonder about all that....

Penni2016 profile image
Penni2016 in reply to jacrjacr

The only thing that is low is my vit d

You may also like...

Stop the Thyroid Madness?

get my bloods tested for another 3 weeks to get an increase of meds and have ordered a book called...

Feedback - Stop the Thyroid Madness

Reverse T3 is down to 40 from 90 when I on 700mcg of Levo. I am taking Forefront Health Bovine...

madness of king George. Was it thyroid?

about the infamous purple urine and if he might have been drinking loads of iodine that led to...

Stop this Thyroid madness

thyroid. Has anyone in the UK (London) successfully been prescribed this by their GP and how has it...

Is this a thyroid issue?

Hello everyone I have an issue for many years and I don't know anyone that has this, specially as...