I've not posted for a while. I've been hypo for 10 yrs on 100mg levo. A few months back started to feel unwell, insomnia, jaw pain, exhaustion, went to docs had bloods done in Oct, dose reduced to 75mg. Fine for a few weeks then same symptoms returned, so I reduced to 50 myself, same pattern ensued so I reduced to 25mg and then came off it altogether just before Christmas as I was really wired, climbing the walls, very irritable. Had bloods done again but they were showing me as underactive again. Doc had no idea why I still felt hyper and tested for antibodies (TPO) which came back 327 vs usual of 109 so Hashis confirmed. I've since discovered hyper and hypo symptoms can be similar and that the attack of the thyroid can release stored hormones hence the hyper feeling. I started back on 50 but the jaw pain soon returned so am trying 25mg for 6 weeks before retest.
has anyone had an experience of this situation and/or thoughts as to triggers? I have been gluten free for 5 years (intolerance), am low dairy (no milk or yoghurt, some cheese). I'm now going to try to eliminate all dairy and grains - had gf oats for breakfast last 2 days and had very obvious reaction - my food intolerances are not gut related, but headaches/shoulder/neck pains.
I'm studying nutritional therapy so very interested in the nutrition route. I was also diagnosed with ME 3.5 yrs ago and recently started to feel significantly better after taking methyl B12 and folate. Recent symptoms have not been ME related, I never had any trouble sleeping! My ferritin is low 13 (range 13-70) and I've read elsewhere it should be nearer 80 for optimal thyroid function? I'm not veggie and eat really well, could eat more fish but I'm not sure how best to up the ferritin and/or which supplements might be useful.
I'm really keen to manage the auto-immune side of things, especially as I don't want another issue cropping up in the future. Any thoughts/advice would be greatly appreciated, especially on the jaw pain which is really unpleasant and radiates into head, neck and shoulders (when I say jaw I mean the joints under my cheek bones)
Thanks in advance