I've not posted on any forum before, but would really like some help. I am 29 yrs old and for the past 6 years have had symptoms of hypothyroidism, tired all the time, slow metabolism, sunken black eyes, water retention legs, face and tongue, dry skin, itchy eyes, hoarseness, cold all the time, aches and pains, brain fog, constipation etc. I had a blood test back then and my T4 was 12 and TSH 6ish and was told that unless my TSH went above 10 I would not be prescribed anything despite feeling rubbish. They did want to keep a check on it and I had blood tests every so often but my T4 was always in normal level but at very low end between 11 and 13 (range 10-22) and TSH was always out of ref range (0-4.5) being between 4.7 to 7.2.
As they would not prescribe anything despite me just asking to trial it to see if it helped my symptoms they would not agree to it, so I stopped getting tested for it. About 3 years ago I started having terrible joint pain starting in my wrists/thumbs and then my lower back and other joints. Rheumatologist diagnosed me first with fibromyalgia and then I saw a specialist who diagnosed me with joint hypermobility syndrome. I continue to suffer terribly with chronic lower back pain.
I was tested again and my levels were still borderline with TSH 7.5. I really wanted a trial of levo to see if it would help with the hypo symptoms as i thought the pain would be easier to deal with if i didn't feel tired and cold all the time and I was really hoping it might help with some of the joint and muscle pain.
So i paid privately to see and Endo and he prescribed levo for a trial to see if it would help. When I started it I had a few hyper symptoms, headache, insomnia and not feeling well, but that stopped after a few days. I tried it for 2 months and blood test showed my T4 was 17 and TSH was 1.6. But i still didn't feel any better, i said this to the Endo and asked him if i should stop taking it or what else should i do. He just told me to keep taking it as my blood results were now perfect and that would be best for the long term.
So I was wondering what other people think I should do. Whether to keep taking levo as Endo said (50mcg) or to stop taking it or try something else? Its just I was a bit worried when I had the hyper symptoms in the first few days of starting it and I was worried that it could make my pain worse being on it. But I also really want something to stop the hypo symptoms and I really feel that some of my joint muscle pain is connected and could be helped if my hypo was treated correctly.
Just thought I'd add I was antibody negative, don't think I was tested for both though. And also my sister had hypo when she was pregnant and there is few other autoimmune disorders in the family.