Started ndt one week, sleeping through the night !!! thank you!

[kafe1]

Hi all I've posted under various title....s just started armour and for the first time in 2 years I've slept through the night! I had been waking at 3 or 4 or 5 a.m usually for 2 hours at a time which was a nightmare and not helping my symptoms.. ffingers and everything crossed!

[bobsmydog]

Yes, fingers crossed! I'm loving being able to get off to sleep at night now I'm on NDT.

I had got to the stage where I'd have to get up most nights after tossing and turning for hours on end and have a bowl of cornflakes which seemed to do the trick for some reason(?!)

[kafe1 in reply to bobsmydog]

Ha thats interesting , yes I've been doing the same thing cereal chamomile tea and a dull book....not a fun 2 hours as I would then be missing that sleep..

how long have you been on ndt?

Weird I take my dose at night as it is a quarter of a grain. It made me sleepy during the day. Perhaps that will change over time

[bobsmydog in reply to kafe1]

just over 6 weeks now, taking 1 grain first thing and half in afternoon.

Used to read the cereal packets over and over, not awake enough for dull book and I always wondered if the RDA/kcals etc (stupid science) took account of my milk and demerara sugar, haha!

[kafe1 in reply to bobsmydog]

How are you feeling yourself generally six weeks in. I Know I've got to be patient. Unfortunately been ill for so many years I'm no longer a patient patient 🐭

[bobsmydog in reply to kafe1]

Generally better, warmer, sleeping well, skin rashes more or less gone, bit more energy, burning feet at night gone, constipation went straight away now has come back so trying magnesium/vit c, lumps on elbows gone, air hunger gone, waking suddenly unable to breathe gone, choking gone, swollen gums gone, lost a couple of lbs, memory and concentration better.

Wow! that has done me some good to remember all those niggling little things which have got better. I know I'm not right yet and it will take time so it's easy for me to focus on the negatives, and it was really good to write down the positives, thank you

[kafe1 in reply to bobsmydog]

Wow that's a long list! I know mine is similar the one thing I hadn't noticed was how scaly my legs are! They've been wrapped in thermal leggings for so long! Will see if that improves. I'm really tired today and its hard when I know its going to take time to improve but like you I'm trying to think on the positive s. I had no idea what to expect. I thought I would feel worse to be honest before feeling better.

I certainly didn't think I would be taking it before bed. I also was getting demented by llack of sleep and was going to reluctantly have to go back onto something for that. Hopefully there will be no need. I actually feel more relaxed in myself. Lets hope for greater things it'd good to know on the right track!

[bobsmydog in reply to kafe1]

ah, I still have the scaly legs, but that will go sometime. I'm sure!

Good luck, we'll get there in the end x

[dashi2208 in reply to kafe1]

Hi, I just read an old post of yours. I was interested to see that your dose is 1/4 if a Grain. I've been struggling to sleep and experiment endlessly with trying to get my dose optimal. Mind if I ask what dose you're on now as a 1/4 seemed really low and made me wonder if I've been over dosing over the last 4 years.

Thanks, Richard

[missymystique]

what was the reason you woke up? did you have night sweats?

Levo helped with mine a bit but still have them time to time

[kafe1 in reply to missymystique]

I think it's to do with adrenals being out of whack but also because of thyroid. I've heard it somewhere on here . .I would wake due to needing the lio then not get back to sleep or waking with nightmares. 4 nights in and am sleeping a lot more normal so we will see .. .

[humanbean in reply to kafe1]

I think it is adrenals too.

My understanding (I'm happy to be corrected) is that the body needs a decent level of thyroid hormone around 3am - 5am to start waking the body up and preparing for the day. One of the jobs it does is to help the adrenal glands to pump out cortisol.

Several things could happen here :

1) If the amount of cortisol produced is too low, then the body creates adrenaline as a substitute. Adrenaline can make people sweat, makes the heart pump faster and harder, makes BP go up. People then wake up jittery, anxious and sweating.

2) If the amount of cortisol produced is just right - there is no problem.

3) If the amount of cortisol produced is excessive. High cortisol has much the same effects on the body as adrenaline. So people wake up.

[kafe1 in reply to humanbean]

Hi thanks for the explaining. I didn't know that one of the thyroid job is to help adrenals release cortisol...that's v interesting. ..

I thought that might be pituitary...I'm on fludrocortisone for adrenals as they were wiped out , hope that once I'm on thyroid hormone s for a while I will come off it. I

[humanbean in reply to kafe1]

Please bear in mind I could have got it wrong! I'm no expert, so I want any mistakes to get pointed out.