THANK-YOU and the Power of the Pen: to all of you... - Thyroid UK

Thyroid UK

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THANK-YOU and the Power of the Pen

thyr01d profile image
13 Replies

to all of you who have supported me on my journey. In response to a letter to my GP, which took weeks to compose and help from friends, I now have a referral to an endocrinologist, something she has been refusing for 18 months.

If anyone in the same position would like to see the letter you are very welcome, just pm me.

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thyr01d profile image
thyr01d
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13 Replies
shaws profile image
shawsAdministrator

I wish you a happy and fruitful consultation.

thyr01d profile image
thyr01d in reply toshaws

Thank-you Shaws, you are one who has helped me greatly, including in providing information in your replies to other people.

shaws profile image
shawsAdministrator in reply tothyr01d

Thank you Thyr01d but once one gets through the maze of hypo treatment to a 'life' and the unbelief when one feels far worse on treatment than before being diagnosed (and that's difficult enough) you want everyone to have the opportunity of good health again by any other thyroid means available. :)

thyr01d profile image
thyr01d in reply toshaws

Thanks, it's good to read this because at the moment I'm preparing myself to be told, rightly, by the endo that I'm completely barking up the wrong tree. I start thinking I'm just lazy and eat too much and making a fool of myself going to an endo. Your email is encouraging, it's lovely the way you help us.

marigold22 profile image
marigold22 in reply tothyr01d

Congrats on writing your letter. I should have done that but didn't have the energy and didn't have good friends around to help. Please don't doubt yourself. However you must keep your wits about you when you do eventually see the endo - they aren't all helpful or really very clever. Clutter et al here know more than even professor endos do. Very very sad. So 35 years down the line for me, I would say to you - do not be afraid to seek a 2nd or even 3rd opinion. Good luck though with your first endo. x

thyr01d profile image
thyr01d in reply tomarigold22

Oh Marigold you made me laugh, just when I think I've made progress you are telling me to prepare for more battle! Did you go to several?

shaws profile image
shawsAdministrator in reply tothyr01d

Some Endos are sensible and good so hopefully yours will be too. Don't do yourself a dis-service by saying 'fat and lazy' because we on this forum know that's not the case and it's due to the 'narrow-minded' guidelines which seem to think that we're all completely identical and that one size fits all. We definitely know for sure that's not the case and if we are prescribed the 'right' hormone for us we should return to good health.

thyr01d profile image
thyr01d in reply toshaws

Thanks for the advice. I start to think that although you are all ill I'm just making a fuss. It's nerves and fear of being brushed off yet again and if that happens of it reinforcing my family's, friends' and GP's views.

Lovely of you to be encouraging.

shaws profile image
shawsAdministrator in reply tothyr01d

I am glad to say I am not 'ill' - I am well and feel fine and that 'everything' is in place to do so.

Our thyroid hormones are very necessary to keep everything in our body 'in balance', i.e. our brain contains the most T3 receptor cells and those who've never experienced a thyroid gland dysfunction can in anyway guess what an everyday struggle most have when not on an optimum of hormones and the correct hormones at that.

Thousands do fine on levothyroxine but not me or many others so we have to have an option or an optimum as many doctors keep their patients in a range which might not be optimum for them and thus their symptoms continue.

We are apt to lose our confidence due to our illness. Don't worry and hopefully everything will work out. :)

thyr01d profile image
thyr01d in reply toshaws

Thanks so much, I'm so moved by your kindness and support my eyes prickle with tears :)

marigold22 profile image
marigold22 in reply tothyr01d

So sorry to be so negative...the first endo I got sent to was a Professor of Endocrinology, lectured at a teaching hospital, with lots of letters after his name. By then I was on T3 instead of T4, changed by Dr P. The endo told me to go back onto T4 and I should be fine!! I was simply trying to warn you that there are loads of endos who aren't as clever as they think they are! I stupidly didn't seek a 2nd opinion as I wasn't well enough to realise anything, and went on to lose my life, including my house. Good luck x

thyr01d profile image
thyr01d in reply tomarigold22

No need to apologise, negativity is helpful when it warns us and helps us be prepared so I appreciate all you write.

How are you now? Have you recovered?

shaws profile image
shawsAdministrator in reply tomarigold22

Oh, I am so sorry you lost your home - it's a tragedy too. Your mental health and emotions will have suffered with all the worry.

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