DIY treatment...?: Ok this is going to sound... - Thyroid UK

Thyroid UK

140,466 members165,261 posts

DIY treatment...?

12 Replies

Ok this is going to sound crazy. I have been doing a whole ton of research and I'm almost 100% sure I am low t3. It seems to be getting worse every day. I have tried to make a doctors appointment many times and they are completely full, soonest I can get is June 11th! I dread to think what condition I will be in by then, and will have to wait another 2 weeks to get the results and order any meds... I blatantly have myxedema and I hurt all over...I have every symptom. I am struggling to function, I sit down in a depressed fog most of the day. I literally can't stand this any longer. Would it be at all considerable to order some t3 and give it a trial very low dose and see if that helped? I have seen most people agree unlessyou have a heart pproblem (I don't) there is no harm in giving it a go? I am also intending to buy some b complex today and I have kelp tabs, I was thinking of adding all these things in gradually over the next couple of weeks while getting exercise, fresh air, sun and lots of healthy food. All these things result in my sleeping for 16 hrs a day atm! I wouldn't consider this at all but I don't know if I can stay like this for another month and a half. Given I may have to do this anyway, would it be worth a go now, even without blood tests/diagnoses?

TIA much xxxx

Read more about...
12 Replies
galathea profile image
galathea

Almost 100% sure with no tests really not sure enough. Why not order yourself a full thyroid function test where you check, tsh, free t3, free t3 and antibodies. That way you will know exactly where you are starting from. You can deal direct with the lab yourself, should be change from £100 and then you will be able to make a decision.

More details under testing. thyroiduk.org.uk

thyroiduk.org.uk/tuk/testin...

Xxr

in reply to galathea

Thanks! Will have to see if I can afford it... why don't we have enough doctors inthis country?! I love your avaavatar btw :)

galathea profile image
galathea in reply to

Well galathea is a type of lobster! Thanks :-)

I put all the testing on my credit card and paid it back when I felt well enough to work!

Xx

in reply to galathea

Well that's what you call an investment in your health ;)

What a marvelous payback, well done! :) xx

HarryE profile image
HarryE

If you can afford it, you can get a DIY blood test kit & get the results the next day

in reply to HarryE

Thanks don't know if I can afford :( but I'll have to see what I can do

shaws profile image
shawsAdministrator in reply to

This is a link to labs:

thyroiduk.org.uk/tuk/testin...

One does pin-prick tests and I think all give a small discount if you mention Thyroiduk.org.uk.

in reply to shaws

Thank you! That is very interesting I will check it out. Who would have thought there were so many nice helpful people in the world! Xx

greygoose profile image
greygoose

Superparrot, if you are low in T3, exercise is going to make it worse. Exercise uses up your T3 - and all your hormones, come to that.

Don't take a B complex until you get your B12 and folate tested, or you will skew the results.

Kelp is high in iodine, which really isn't recommened if you have Hashi's. You should never take iodine unless you've had a test to say you're low. And even then, it should be approached with caution.

Taking any form of thyroid supplementation will skew the blood tests and compromise getting a diagnosis.

What you can do to feel a bit better is take some magnesium - they won't test for that, anyway. Low magnesium is going to give you a lot of symptoms and make you feel really bad. And plenty of vit C. Eat plenty of fat - you need it to make hormones - and plenty of salt, to support your adrenals. And plenty of calories, come to that. Starving yourself is only going to make things worse!

greygoose profile image
greygoose in reply to greygoose

Forgot to say, it doesn't sound crazy at all. It's only natural to want to get well. But we can't do just anything, we have to proceed with care. :)

in reply to greygoose

Thanks so much greygoose! You are absolutely right of course. Interestingly, I have been taking magnesium, eating lots of fats and avoiding exercise anyway, for that very reason :) certainly I am being very careful about this as I have had quite enough of messing my health around! Thanks for your ideas and kind words xx♥

greygoose profile image
greygoose in reply to

You're very welcome, superparrot. :)

Not what you're looking for?

You may also like...

Im after some advice re taking NHS T3 after using cynomel please......

Several weeks ago i placed an order with the Mexican pharmacy for more cynomel. After checking on...

Combo Treatment lowering FT4 Unacceptably - I'm stuck

I've been on combo treatment since November last year. The endo rushed me in the early stages and...

Dropped down to 2 grains of NDT from 3, FT3 above the range, FT4 nearly below?

I don't know what to do, I dropped down from 3 grains as I was getting heart palpitations, and I...

When to Dose T3 Only?

Hi, I have posted here before but not in a few months as I was sorting out what medication route I...

SlowDragon please comment on my situation if you're around.

Hi, I'm not able to get labs until Jan. 13, hopefully. This clinic is going under and everyone...