TSH question : In December my TSH was 2.8. Now... - Thyroid UK

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TSH question

Funnygembunni profile image
7 Replies

In December my TSH was 2.8. Now its 1.9. My T4 was 1.52 in December, now its 7.3. Anyone able to find any sense to this because the doctors where I live don't seem to know anything about hoshimotos nor that someone can't live with constant symptoms even though they saying all labs are normal

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Funnygembunni
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7 Replies
shaws profile image
shawsAdministrator

Hi, did your doctor also test for thyroid antibodies. I note you say you have hashimoto's so were you given that diagnosis because you had antibodies? If you had antibodies they should be treating you with levothyroxine.

Funnygembunni profile image
Funnygembunni in reply toshaws

Gosh yes. My thyroid peroxidase was over 600, been ready to pass out for 9 months since it started and had t3, t4 and TSH labs and since they are all so called within normal ranges the doctors are ignoring my symptoms completely

shaws profile image
shawsAdministrator in reply toFunnygembunni

So, you are not on any thyroid hormones. We have to read and learn so much if we want to recover our health. My assumption is you are not on levothyroxine.

Email louise.warvill@thyroiduk.org and ask for a copy of the Pulse Online article by Dr Toft (he was President of the British Thyroid Association) and ask your doctor to prescribe levo as advised by Dr. Toft. I cannot remember the number of the question, I think 4 but you will read what he says if you have antibodies and he says to 'nip them in the bud'. You have had a 'learning curve' i.e. doctors seem to know little about the thyroid gland, clinical symptoms, and patient continues suffering. Disgraceful.

Funnygembunni profile image
Funnygembunni in reply toshaws

I have to agree,t clinical symptoms are so scary and they never let up. Once a day maybe for a few hours I feel alive. Anti DNA way high along with thyroid peroxidase and went to an endocrinologist and he simply stated he doesn't treat these symptoms and it's not my thyroid making me feel this way because thyroid tests are " normal". Ive been reading and reading and learning as much as possible. Going to a doctor as far away as possible to get some help. Changed my diet drastically and am just learning all I can to help myself. But not one doctor has offered or suggested Levo. Or any treatment at all.

shaws profile image
shawsAdministrator in reply toFunnygembunni

Most don't know or don't seem to care about the patient either. They think it is o.k. to prescribe levo when our TSH is very high. You now have an expert's view so take copy to your doctor and ask for levothyroxine.

Funnygembunni profile image
Funnygembunni in reply toshaws

Thank you, I'm relieved to have heard from you

Clutter profile image
Clutter

Funnygembunni, TSH fluctuates according to circadian rhythms and is highest in the early hours and morning and lowest in the afternoon. That's why we advise members to have early morning fasting blood tests when TSH is highest.

FT4 doesn't follow circadian rhythms so the fluctuations may be due Hashimoto's attacks on your thyroid gland.

If you checkout Hypothyroidmom and Mary Shoman's FB pages they may be able to recommend thyroid/Hashi aware physicians in your area.

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