Hashimotos: Could someone please tell me about... - Thyroid UK

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Hashimotos

Scampi1 profile image
6 Replies

Could someone please tell me about this condition and symptoms, what happens what should I expect, and long term health, in laymans terms if possible, it's all very confusing with different websites.

Thank you for your help.

LThyroid levels

Nov 2013 TSH 3.02 (04.40)

Feb 2014 TSH 2.16 (04.40)

Jul 2014 TSH 6.74 (04.40)

Jul 2014 TSH 2.56 (04.40)

Aug 2014 TSH 2.56 (04.40)

Sept 2014 TSH 2.10 (04.40)

Nov 2014 TSH 0.33 (22-42)

Feb 2015 TSH0.21 (27-42)

Nov 2013 free T4 13.8 (12.22)

Feb 2013 free T4 15.6 (12.22)

Jul 2014 free T4 15.1 (12.22)

Jul 2014 free T4 15.7 (12.22)

Aug 2014 free T4 15.7 (12.22)

Sept 2014 free T4 16.5 (12.22)

Nov 2014 free T4 22.9 (12.22)

Feb 2015 free T4 19.8 (12.22)

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Scampi1 profile image
Scampi1
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6 Replies
Clutter profile image
Clutter

Scampi, Your TSH is nice and low and your FT4 is in the optimal 75% top of range. Your current dose looks to be optimal but if you are still symptomatic it would be worth asking your GP to test FT3 to check level as it is low T3 which causes hypothyroid symptoms. Some NHS labs won't test FT3 unless TSH is suppressed <0.04 but you can order a private FT3 test from Blue Horizon or Genova via thyroiduk.org.uk/tuk/testin...

Hashimoto's is an autoimmune thyroid disease which causes 90% of hypothyroidism. Hashimoto's is the disease and hypothyroidism is the condition it causes. Your GP may have tested for antibodies when you were first diagnosed, if so, ask for the results with the lab ref ranges and post them in a new question and members will advise whether Hashimoto's has caused your hypothyroidism. Most people have a few antibodies but being above range determines whether they are positive.

If you are positive for Hashi's your own immune system attacks your thyroid gland causing it to fail until it is unable to produce sufficient thyroid hormone (hypothyroidism). Eventually these attacks will cause the thyroid to completely fail and shrivel. During a Hashi attack the thyroid gland may enlarge and become tender and as thyroid cells are destroyed hormone can be dumped and can make the patient feel hyper and hypo at the same time or in succession.

NHS doesn't treat the underlying cause of the autoimmune disease (Hashimoto's) but treats the resulting low thyroid hormone (hypothyroidism) with Levothyroxine. Doses which suppress TSH have been helpful in reducing Hashi attacks and antibodies. Many people think that all autoimmune disease starts in the gut which is why Hashimoto's patients are often advised to try a gluten-free diet which can help to reduce Hashi flares and antibodies but g-f isn't successful for everyone. If you can persuade your GP to do a coeliac blood screen to test for gluten intolerance you must continue eating normal gluten, at least 2 slices of bread daily, until after the test or it will skew results.

thyroiduk.org.uk/tuk/about_...

Scampi1 profile image
Scampi1 in reply toClutter

Thanks for the reply, I have been so I'll of late, gp just keeps saying it's the menopause, which is not helping with anything.

Is there anything I can take to try and help myself.

I am taking 75 mg levo, and have never really felt any better, the odd week.

I have a lot of symptoms.

Sweating but freezing at the same time

Hyper and hypo

Aching joints/stiff joints

Hair loss/ hair growth

Nervousness/ anxiety

Depressed

Tremors

Jelly legs

Lethargic

Insomnia

Flu type symptoms

Buzzing in ears

Dizziness

Nausea

Memory lack of

Lots of illnesses

Stomach problems

Is it the autoimmune disease that gets treatment, or the hypothyroid

Clutter profile image
Clutter in reply toScampi1

Scampi it's the hypothyroidism that gets the Levothyroxine treatment.

Unless you plan on asking for a coeliac screen I suggest you try gluten-free for 2 or 3 months to see whether stomach problems improve.

Ask your GP to test zinc, ferritin, vitamin D, B12 and folate as levels are often low/deficient in hypothyroid patients and can cause musculoskeletal pain, low mood and fatigue and low ferritin & zinc can cause hairloss.

KLR22 profile image
KLR22 in reply toScampi1

I can sympathise as I have Hashimoto's and am going through the menopause - not a good combination! It is difficult to know which condition to blame.

Karen

Scampi1 profile image
Scampi1

Not been diagnosed with hashimotos, but I think I may have it, also on sertraline, I feel absolutely dreadful today and have done for the last couple of days, could be the increase in the sertraline which has caused seretonin syndrome, I have all the symptoms, or it could be interaction between thyroxine and sertraline.

I have been on levo for 4 years and really no change, the odd week here and there.

Been to a n e 3 times did the basic thyroid test said they could not find anything sent me home with orimorph, missed xmas completely.

This past 3 days I have uncontrollable shaking, tremors, panic anxiety, I can't eat, I am sweating severely then goosebumps and freezing the next, all my joints keep going rigid, insomnia, thirsty, loose bowels, headache. Sore neck at the back, this has all happened since increase of sertraline.

I don't take hrt because my body does not like it, but it seems my body does not like anything.

Zohar profile image
Zohar

Hi scampi, sertraline may make you feel worse, then better, and this type psych med should come with a black box warning that a normal GP may not think of giving, so if your feeling real bad don't disbare you now have the power and the knowledge that they may make you feel screwy to begin. Then you can be at your best on the drug combo ,apply reason, then change medications if you need.

Ps G-d forbid, but sertraline can make you feel suicideall at first.

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