What to do?

Hello,

I'm 27 and have congenital hypothyroidism. I just know something is not right despite all levels within normal parameters. I also take beta-blockers due to having palpitations. I wondered if it was anything to do with my thyroid or maybe something else. Just over the last few months my temperature won't regulate Im always cold until I carry out an activity or go to bed then I'm drenched in sweat. My sleeping pattern is a nightmare and falling to sleep can be very difficult some nights. My moods are all over the place, sometimes it can take a tiny thing to make me highly irritable. Don't like feeling like this. Any ideas any one??

Thanks

Xx

6 Replies

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  • Have you had your T3 and T4 checked as well or just the TSH? I REALLY had to fight with my doctors to get the T3 and T4 tested too! Keep going back to your doctors.

  • Hi they checked it all and when I called for results they said it was everything was fine and that was that. Wasn't very helpful. I will be a bit more persistent now.

    Thanks

  • Normal and "fine" are words often bandied about by those who interpret blood test results. There's no such thing as normal, and fine is a very relative term!

    Do you know the actual results, with ranges? We can help you interpret what they really mean if you post them here. You're entitled to know what they are, so don't let anyone fob you off.

  • Thanking for replying I will enquire my results and post them up.

  • Ask your surgery for a print-out of your blood test results with the ranges. You should always get a print-out from now on for your own records and so that you can post if you have a query. Get your latest results then post them. If you haven't had a Vitamin B12, Vit D, iron, ferritin and folate ask for these to be done as we are usually deficient and can cause us problems as well.

    I agree with Jazzw - fine and normal don't equate with feeling well when on thyroid medication. We want low or very low or supressed, whichever makes us feel good.

    We have to read and learn in order to get well as most GPs diagnose us according to where the TSH is instead of taking notice of our clinical symptoms we still have.

  • Thanking you for replying, I'm going to get on to my GP ASAP and Ask to have all those bloods taken and also for my last results.

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