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Jake123- profile image
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Has anybody on here after a TT had there thyroid grow back

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Jake123- profile image
Jake123-
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helvella profile image
helvellaAdministratorThyroid UK

See this post:

healthunlocked.com/thyroidu...

steliz profile image
steliz

Yes, I had a TT, and 11 years later had the same symptoms and was told by the endo that it was impossible! However once tested, found it had grown again so I then had RAI. Hopefully it can never grow again!

Fed_up profile image
Fed_up in reply to steliz

What signs did u have?

I mean did u feel like u had a lump in ur throat all the time & u have swallow all the time to try & move it?

I had my tonsils out when 9 & they grew back so wondering if I'm doing it again lol ie growing my thyroid back after having it "mostly" removed

steliz profile image
steliz in reply to Fed_up

No. Mostly I had racing heart, trembles (shakes, couldn't hold a cup) and lost about 3 stone in weight. Originally, I had severe thyrotoxicosis with a toxic level off the scale. Surgeon just said that thyroid was 'in a terrible state'. Also had a goitre, first and second times. Now of course I am hypothyroid and take 75 mcg thyroxine each day. Well overweight though, and can't shift it.

faith63 profile image
faith63

Wouldn't TT be a last resort, only for Cancer?

Fed_up profile image
Fed_up in reply to faith63

No

Mine was removed because it was multi nodular & growing around my esophagus

My concern is that it's once again trying to strangle me as same symptoms

Trouble swallowing liquid & sometime fluids

Always feeling like there is something sitting in there that I just can't shift

Am having ultrasound Tuesday so mystery will b solved one way or other

At least the doc didn't dismiss my concerns

faith63 profile image
faith63 in reply to Fed_up

Please let me know what happens. If you have Hashimotos or Graves, it could be attacking any remaining tissue, as they never remove all of it or they can damage the Parathyroids. Also, you could be having Esophageal Spasms. I think i may now get those. I had a constant awareness in my throat, pressure, but the ultrasound showed a tiny, intact thyroid, which was a real surprise. I have had a chronic sensitive throat too, since getting Hashi's..so i think it is related. I really want to know what they find! Sorry that you are going through this..you must be very upset, after all you have been through.

Fed_up profile image
Fed_up

frankly.............no not upset. More curious I feel. I think since taking control of my own health Im not so anxious as I can always go for second or third opinion if I want.

I think that having a GP who doesn't dismiss ur concerns helps too.

will keep u posted as it will b very interesting to c if it is rising from the dead so to speak.

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