It is quite some time since I have written a post on Health Unlocked, but I just felt I should let you know that this morning I had the great privilege of meeting Dr Chandy. He is probably one of the nicest human beings I have met. (and I can tell you I can be cynical with the best of them). He has the quality that is so rare these days, he is genuinely a “good man” and the sort of GP that everyone dreams and hopes for, but rarely ever gets.
I was invited to attend a coffee and chat morning in Horden (in the North East of England) at the charity he is involved in b12d.org/, and needless to say I jumped at the chance, but the icing on the cake was, to find out when I got there, that Dr Chandy was attending. The people who were there were the charities administrators, people who help out and who are all suffering with B12 deficiency, endocrinocrinology problems, Addison's Disease, Chronic Fatigue and problems that even the best doctors in the country cannot even diagnose – but again these people were lovely. Empathy was in abundance. At the end Dr Chandy took time out to speak to me about my daughter who has been diagnosed with Chronic Fatigue Syndrome - at the minute she is more important than me, (I am having to self medicate because I am subtley B12 deficient, because GPs won't help), but what mother wouldn’t say that!).
Dr Chandy gently sat me down and explained about the problems surrounding calling it Chronic Fatigue. He asked what bloods had been taken (I didn’t know) so he told me to find out what tests had been done. He wrote down a complete list of what she should have. I asked was there anything we could do if the GP refuses (my GP has refused me blood tests) so he gave me bluehorizonmedicals.co.uk/. I think this company’s information has been given on Health Unlocked before. He then wrote down his telephone number, by this time I was fighting back the tears, being so overwhelmed by this “gentleman’s” humanity.
I would suggest to anyone that feels their suffering is being ignored - aches, pains, terrible fatigue and generally in a terrible state, that the likes of Thyroxine is not addressing, to have a look at the b12d.org website. It is run by genuine people who care, and at least with a bit of knowledge you can rule in or rule out symptoms.