Nodule Biopsy Results

[cloudwalker]

Hi everyone I received my thyroid nodule biopsy results yesterday and it is not malignant and has no suspicious cells I am relived it's not cancer but I don't feel as relived as I thought I would which is crazy given what the alternative could have been

But the appointment didn't go as I thought, when I had the biopsy the doctor who did it said the results would say how fast it was growing and whether it was cancerous or not and that everything would be discussed at my appointment but all that happened is I was told the results and told I would get another appointment in 6 months and they would do another ultrasound and biopsy and if it was clear and hadn't grown they would leave it, I tried to talk about my other symptoms but all he was concerned with is that I could swallow okay which I can but the area where the nodules are gets sore and that side of my neck aches and my right ear gets sore at the same time I just wanted some reassurance that this was "normal" for what I had

He then said if I was worried about anything to talk to my GP but surely he referred me to the specialist to get answers etc and he also said that it wouldn't hurt to get another thyroid function test done either as my result was 0.9 last time and my GP did say it's on the low side of normal and could be causing a problem and the specialist would know more but I didn't get an answer on that either yesterday

So whilst I am relived I also feel I have been just brushed off I thought these nodules grow and have to eventually come out as they cause problems with swallowing and breathing I asked the doctor this yesterday but just told to keep an eye on it and they would see me in 6 months

Also does anyone know if there is still a possibility that the cells could turn nasty in the future even though the result was benign? x

[sakura20]

I also have thyroid nodule and I'm still waiting for the FNAC result. I'm nervous and so anxious to find out the result. I pray that it's benign.

You might want to get a second opinion from another doctor. If it's not causing you any problem, maybe there is nothing to worry. Sorry I can't give you a good advice as I am also new to this.

[cloudwalker in reply to sakura20]

I know how you feel I got my results 3 weeks after the biopsy but it felt like months and I was nervous and anxious too I have been ever since I found the lump in my neck in June this year but there are a lot of lovely people on this site who can help with advice and reassurance I know it has helped me posting on here

I really hope you get your results soon and that they are clear

Take care x

[sakura20 in reply to cloudwalker]

Thank you. I just came from the hospital. My FNAC was done a month ago. It's inconclusive, so repeat FNAC will be done after 2 months . I'm still nervous and worried

[Clutter]

Cloudwalker, I'm glad the FNA was benign. Watch and wait with periodic FNAs is usual in case cancer cells were missed or develop even though cancer is rare. You probably don't feel as relieved as you think you should because you still have symptoms and discomfort which the endo didn't address or reassure you about.

From what I've read it is normal to feel discomfort in the neck and ear when the nodule isn't compressing the windpipe affecting breathing and swallowing. I think it's due to the direction the nodule is growing and in your case it's likely that the nodule presses on nerves in the area.

Nodules don't always grow and can shrink spontaneously which is why hemilobectomy isn't scheduled unless the nodules impact unduly on nearby organs or cause breathing an swallowing problems.

[cloudwalker in reply to Clutter]

Thank you Clutter you have helped me a lot since this all started and put my mind at ease I really can't thank you enough

Take care x

[carol1962]

I had an ultrasound done at Hinchingbrooke Hospital Huntingdon. It took them 13 wks to give me my results, (an ENT specialist) and that I had Hashimoto's , then didn't inform my Gp till another 3 or 4 weeks after that. I too have a goiter with nodules, now growing just under my ears and now pushing my jaw out of place!! Been told to see my gp and go back in 6 months!!! The Goiter is 5 yrs old ( when I wemt 5 yrs ago a Gp who I saw told me I hadn't got a goiter although my nieces husband who is also a GP told me I had the beginnings of one now who was right) I have trouble with my neck movement, as my shoulders neck and head are painful to move. I find lifting anything strains my neck!!! I have extremely cold feet and lower legs, when I go and heat them up I can feel the warmth going up my legs. My toes and fingers can go numb, my writs have oedema, my hair is dry, skin is very dry and starts to bleed and crack. I can't sleep, I have to have a pillow supporting my neck, I have gum problems ( a another Gp I saw told me gum problems weren't a symptom) I am on anti-depressants Citalopram, Tramadol for pain and Ibuprofen for the pain in my jaw as it now clicks , I also have to wear an eraisor most of the time, just taking it out when I am eating as my teeth grind! I also get constipated or have diarrhoea, I have memory problems, I have to write everything down. My antibodies are 508!! My TSH is 2.75. I have joint pains all my life, I have lived in a fog and had learning problems, understanding things others could do straight away! I am fatigued. I can no longer organize my self , if I don't do something there and then I forget and then miss out. Totally fed up. Another consultant Endocrineologist I saw privately couldn't tell from my other results that I had hashimoto's what is wrong with some Dr's!!! I am now waiting to go to see an endocrine specialist at Addenbrooke's Cambridge , I am going to see if I can get a cancellation as my Gp booked the appointment but for 11 weeks time, now not till February!! My Gp and consultant would only go on blood results not symptoms as above, they want to treat them individually instead of putting them in one box!! I have now put my self on a Gluten free diet through the research I have done. I may now go totally grain free, and some dairy free. I have found out not to have Fluoride in your toothpaste or water (some bottled water has it in) and sorbitol in toothpaste and mouthwash. I saw a surgeon and told me my condition wasn't very common, just goes to show he neither has done any research. He looked up my nose, put a scope up my nose and down my throat I saw him privately he charged me over £400 for the pleasure. Then told me as I had so many symptoms to see him under the NHS! He said he would refer me to Peterborough City Hospital, but according to a letter I received he hadn't refurd me at all!! I ahd extra bloods done, but the gp who told me gum problems wasn't a symptom told me my results were normal!! Why don't Dr's look at the symptoms not just the blood tests!! i also have a family history with my father having hashimoto's over 40 yrs!!

[carol1962]

I had an ultrasound done at Hinchingbrooke Hospital Huntingdon. It took them 13 wks to give me my results, (an ENT specialist) and that I had Hashimoto's , then didn't inform my Gp till another 3 or 4 weeks after that. I too have a goiter with nodules, now growing just under my ears and now pushing my jaw out of place!! Been told to see my gp and go back in 6 months!!! The Goiter is 5 yrs old ( when I wemt 5 yrs ago a Gp who I saw told me I hadn't got a goiter although my nieces husband who is also a GP told me I had the beginnings of one now who was right) I have trouble with my neck movement, as my shoulders neck and head are painful to move. I find lifting anything strains my neck!!! I have extremely cold feet and lower legs, when I go and heat them up I can feel the warmth going up my legs. My toes and fingers can go numb, my writs have oedema, my hair is dry, skin is very dry and starts to bleed and crack. I can't sleep, I have to have a pillow supporting my neck, I have gum problems ( a another Gp I saw told me gum problems weren't a symptom) I am on anti-depressants Citalopram, Tramadol for pain and Ibuprofen for the pain in my jaw as it now clicks , I also have to wear an eraisor most of the time, just taking it out when I am eating as my teeth grind! I also get constipated or have diarrhoea, I have memory problems, I have to write everything down. My antibodies are 508!! My TSH is 2.75. I have joint pains all my life, I have lived in a fog and had learning problems, understanding things others could do straight away! I am fatigued. I can no longer organize my self , if I don't do something there and then I forget and then miss out. Totally fed up. Another consultant Endocrineologist I saw privately couldn't tell from my other results that I had hashimoto's what is wrong with some Dr's!!! I am now waiting to go to see an endocrine specialist at Addenbrooke's Cambridge , I am going to see if I can get a cancellation as my Gp booked the appointment but for 11 weeks time, now not till February!! My Gp and consultant would only go on blood results not symptoms as above, they want to treat them individually instead of putting them in one box!! I have now put my self on a Gluten free diet through the research I have done. I may now go totally grain free, and some dairy free. I have found out not to have Fluoride in your toothpaste or water (some bottled water has it in) and sorbitol in toothpaste and mouthwash. I saw a surgeon and told me my condition wasn't very common, just goes to show he neither has done any research. He looked up my nose, put a scope up my nose and down my throat I saw him privately he charged me over £400 for the pleasure. Then told me as I had so many symptoms to see him under the NHS! He said he would refer me to Peterborough City Hospital, but according to a letter I received he hadn't refurd me at all!! I ahd extra bloods done, but the gp who told me gum problems wasn't a symptom told me my results were normal!! Why don't Dr's look at the symptoms not just the blood tests!! i also have a family history with my father having hashimoto's over 40 yrs!!