Help needed possible thyroid

doctors still refusing to believe there are thyroid issues. Person is 5ft 4ins and has dropped to six stone, hair falling out daily, chronic fatigue, vitiligo, muscle pain, weight loss, polycycstic ovarian syndrome, IBS, chemical sensitivity, absorbtion problems. had appointment with Dr Korendowych at Bath national hospital for rhuematic disease. person could not get there but had telephone consultation as housebound. will not accept thyroid tests etc done through thyroid uk as they said that they are not accurate and cannot be relied upon. Did not know in this country that we can let someone die and deny them access to treatment!!.

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  • Sorry, can't really help, but I'm sure someone will be along that can.

    What has the GP said about all her symptoms? Have they done any blood tests?

  • they have put all the symptoms down to mental health, even though the mental health team has said that it is a physical condition.

  • At least the mental health team seem to be on the ball! Thyroid problems can cause problems that might appear to be mental problems, I know I felt very out of control when I was hypothyroid due to over medication.

    Many of her other symptoms point to hypo too. Have they done any thyroid tests? She is entitled to see the results of any blood tests she has done (regardless to what her GP may think) plus ranges. Levels can be low but still within a range they deem to be ok (but often not optimal)

    There are also other tests that 'should' be done by the GP ie Vit D, B12, Ferritin, Folate,

    Is Bath RHU her normal hospital? I see an Endo there for my Graves, cant say she's that on the ball as her specialist medicine is Diabetes (as is often the case) but she ended up letting me do things my way :)

  • lives in north devon, they cannot help her here trying to get help vit d was low having q10, low in minerals, weight loss etc blood test from gp showing within range, genova diagnostics tests showing probable hasimotos/graves and also an absorbtion problem. but because TSH is deemed ok and other tests are low but in range they think there is not a problem.

  • sorry to ask silver_fairy was your hypothyroid due to overmedication in general?. This is what we think happened to the person that I am talking about.

  • I have Graves' disease and had some of the above symptoms before I was diagnosed - weight loss, bowel problems, joint and muscle problems, fatigue. I was put on the anti thyroid Carbimazole and left to go hypo. I then experienced joint and muscle pain, weight gain, dry skin and hair, fatigue, constipation. But I think the worse symptoms were the depression and brain fog and lack of concentration etc. I was so down at one stage I seriously contemplated suicide. Not as a cry for help, I really did not want to live like that anymore. I know that with both hyper and hypo some symptoms can be the same, so looking again at what the person has I am not sure. Some may also be due to vitamin deficiencies.

  • I have Graves' disease and had some of the above symptoms before I was diagnosed - weight loss, bowel problems, joint and muscle problems, fatigue. I was put on the anti thyroid Carbimazole and left to go hypo. I then experienced joint and muscle pain, weight gain, dry skin and hair, fatigue, constipation. But I think the worse symptoms were the depression and brain fog and lack of concentration etc. I was so down at one stage I seriously contemplated suicide. Not as a cry for help, I really did not want to live like that anymore. I know that with both hyper and hypo some symptoms can be the same, so looking again at what the person has I am not sure. Some may also be due to vitamin deficiencies.

  • Sorry can admin sort double post, I'm on my stupid phone!! :/

  • What did the blood tests you had done show? Did the doctor organise his own blood test for her? If he just did nothing surely that is negligent? What is her GP doing?

  • They just keep doing routine blood tests and will not acknowledge any private test, even though the medical centre admitted it was a bonafide company "genova diagnostics".

  • Do you have a copy of all the results of the blood tests. If you do please put them on here and you will get lots of advice. I you don't have the results just ask your friend to ask for copies with the reference ranges. It is her right to have them so they cannot refuse to give them to her.

  • her gp is doing nothing . we have had an nhs trust enquiry that took 18 months and came back as a whitewash and they saud that they are not going to offer anymore treatment we have exhausted nearly all avenues, just got the health ombundsman left. the gp is coming out again today.

  • Hi Your Calcium and PTH and vitamin D should be tested and more than onetime. Your symptoms/conditions are like those of Hyperparathyroidism not to be confused with thyroid. Diffcult to diagnose for those who have fluctuating levels. Go to parathyroid .com and read about this. It is curable but the diagnosis is difficult in some cases. Good luck Most of those who have this also have thyroid issues too.

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