Tingling and burning after eating.

[Caze]

Does anyone experience burning and tingling in feet and lower legs after eating? Have had nerve conduction test which was fine. Type 2 diabetes is well controlled - blood glucose not high and Endo is even doubtful I have diabetes. Also been experiencing headaches am - seem to get worse about an hour after eating a low GI brkfst of porridge and nuts. Any ideas or suggestions?

[Heloise]

Hi caze, I've had nerve conduction tests that appear normal but the physiatrist commented that they cannot test small fiber nerve damage or disregulation, which is what diabetics and hypothyroid patients usually suffer from. He recommended gabapentin for this but I take Gaba and it helps.

[Jackie]

Hi I am like this with Peripheral Neuropathy only worse. It is from my controlled diabetes.

Jackie

[Hidden]

I have this very severely for a year in arms and legs. Mine definitely doesn't relate to diet or vitamin deficiencies and I'm gluten free although I don't have Coeliacs or diabetes. I'm told by my GP that my hypo is well controlled by 100mcg levo. I'm waiting to see the neurologist but basic nerve conduction test (GP) only showed slight sensory impairment to date. My rheumatologist (I have RA) says he doesn't think it is the RA but believes it to be small fiber neuropathy. My GP thinks it is secondary Raynaud's. I've tried a Raynaud's drug which helped a bit but also caused flushing and extreme fluid retention and low BP. Off all big drugs just now as I am so intolerant. Have just started Gaberpebtin and hoping I can tolerate it and that it works as this constant burning pins and needles with wet legs and squelchy feet is the nearest I've come to hell.

As yours affects you only after food perhaps eliminating certain foods such as gluten or dairy would help you get to the bottom of it?

[Caze in reply to Hidden]

H Twitchy toes . My detective work is still a work in progress but I wd not rely on yr GP to tell u yr hypo is well controlled. I was told by 2 different endos that my thyroid was optimally treated with a FT3 below ref rge cos my TSH was suppressed. Get a copy of yr bld tests with ref rges and post on this site just to be sure.

[Hidden in reply to Caze]

I've done that before here thanks Caze. My TSH is supressed, my fT4 is low within normal range always and my FT3 is bang on normal. Conclusion on here is that I'm still undermedicated - need more Levo - but of course GP doesn't agree!

I've researched this and I don't believe that my hypothyroidism would be causing this severe parasthesia or contributing to RA symptoms. I take B12 supplements (a type recommended on here) just in case and I also take selenium, magnesium with B plus AdCal D3 and extra D capsules.

I think I'm just an autoimmune rarity and hoping the neuro will be much better than my useless rheumy is at solving this problem - which is giving me little sleep and putting my life on constant hold.

[Exultate in reply to Caze]

Howdy. While I appreciate good info, I sure wish you'd write in standard English. All this hyper-abbreviated stuff makes it either hard to read or impossible to decipher, just frustrating some of us who think you may have information of value to share somewhere in there.

Thanks.

[Heloise in reply to Hidden]

Hi Twitchy, I thought the gabapentin worked very quickly. I started off with 100 mg pills and added a second or third each week until symptoms stopped. I hope you find relief.

[Caze]

Many thks fr all yr useful comments. I notice the burning and tingling which comes on pretty soon after eating more than at other times but I I do get it at other times too. I had this prob some time ago and I got rid of it. Trying to pin point how. I am also having headaches which are a.m and go on fr hours plus gastro probs - so my body is not happy. If I cme up with anythg useful will post.

[Polaris]

In his book, "Living with Pernicious Aanaemia, Martyn Hooper states,

"Another little known consequence of B12 deficiency is a burning sensation in the legs and feet, known as 'Grierson Gopalan syndrome'. This was reported by 33.4 per cent of respondents."

His conclusion: "there is a need for the symptoms associated with B12 deficiency to be revised and disseminated to physicians so that they can actively look for signs of any deficiency. Failure to recognise this deficiency leads to misdiagnosis or patients being left without any explanation for their condition - sometimes for many years, during which they are at risk of developing serious and irreversible nerve damage".

One other thing, Metformin, a treatment for diabetes, is one of a number of other drugs mentioned in "The B12 Deficiency Survival Handbook", which depletes the body of B12.

[Caze in reply to Polaris]

V interesting - I do use a B12 spray and last blood work showed OK levels. Some yrs ago I did take the active B12 test at St Thomas Hospital and it was OK. I do take a low dose of metformin. Thk I might get my levels checked again and discuss with GP.

[shaws Administrator in reply to Caze]

If we have a B12 deficiency or P.A., our stomach cannot absorbe vitamin B12 so therefore have to have injections or sublingual B12 (which bypasses stomach).

[Caze in reply to Polaris]

Hi Polaris

Just looked up G. G Syndrome. There is a link with Hypothyroidism- I wonder if the prob wd improve if one is adequately and correctly treated fr the hypothyroidism.

[Sparklefizz]

Hi Caze

Try eating a different breakfast and see what happens. I have a lot of food intolerances and your symptoms sound like intolerance/allergy to me. Could be gluten as well as nuts. People think of dramatic allergic reactions with nuts, but this is not necessarily the case. I could not tolerate your breakfast at all. Try something like scrambled eggs with some bacon, and investigate a high fat, low carb diet to sort out your Type 2 (which, as you say, you might not even have!) Check out the Harcombe Diet. Many people on that forum have knocked their Type 2 Diabetes into touch by eating the Harcombe way, and are no longer diagnosed diabetic.

[Caze in reply to Sparklefizz]

Will give the nuts a rest and do the scrambled eggs instead of gluten free porridge. Not heard of Harcombe diet but sounds a bit like the stoneage diet - will have a look.

[Sparklefizz]

It IS a bit like the Stoneage Diet in that it recommends eating real unprocessed food, but otherwise it has several differences. I really think it would help you sort out what's happening. I think when we've got an illness (and I've got more than one!) we tend to blame it for every symptom we have when that might not be the case.

[Sparklefizz]

PS. The symptoms of food intolerance can be very wide-ranging and not at all what you might expect ... it's not just a rash or stomach upset but can cause weird and wonderful symptoms including emotional and mental effects.

[furu_siris]

I experience this too. For a few months now. I realized it always happens within an hour after i eat any kind of nuts. From experimenting I'm starting to believe it happens after every time i eat foods with a high fat content. I haven't perfectly narrowed it down, but this is just a correlation i noticed. Still wondering if anyone has found a clear diagnosis, cause, or test that will inform of what bodily process is dysfunctional in order to work on fixing the issue