No thyroid at all

I've not long joined this blog and want to know more about my condition and how I can help myself.

I'm 61 and have no thyroid due to Autoimmune problems undiagnosed for years. I was very, very ill before going to a private alternative therapist who had lab tests done which I then showed to my GP. I won't go on but its been a long story of GP after GP misdiagnosing all my symptoms and even the consultants causing me more problems than the original illness. Anyway I've been on Levothyroxin for years now and my thinking/recall abilities, after improving for a while, are getting worse again. Many symptoms, may be due to Pernicious anaemia/ lack of absorption of nutrients but its all so complicated I don't know where to begin.

I work with nutritionists, homeopaths, acupuncturists, naturopaths when I can afford to and help myself with top nutrition, yoga and mind-body stuff but no one can see the whole picture. So without calming down my immune system, removing antibodies and getting a new thyroid am I doomed to get more and more stupid, more allergic to the world and even weaker?

Any advice will be very appreciated.

1 Reply

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  • Winschild, If you post your recent thyroid blood results with the lab ref ranges (the figures in brackets after your results) and say what dose and medication you are taking members will advise whether you are optimally medicated.

    Scroll down to Guidelines and Treatment options to read Dr. A. Toft's comments on medication and TSH levels

    thyroiduk.org.uk/tuk/about_...

    Sometimes FT3 is low in thyroidless patients as up to 20% of T3, the active hormone, is produced in the thyroid. They may need the addition of some Liothyronine (T3) to a reduced dose of Levothyroxine (T4) to feel well.

    Unlike Graves antibodies which can go on to attack other organs after removal of the thyroid, Hashimoto's antibodies usually go dormant when there is no thyroid to attack.

    Ask your GP to test ferritin and vitamin D, as hypothyroid patients are often deficient/low and these deficiencies can cause musculoskeletal pain, fatigue and low mood similar to hypothyroid symptoms. Post your results with the lab ref ranges and members will advise whether supplementation is required.

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