An article I just read has made me want to castigate the medical profession in a very particular way. All too often we see inadequate care and understanding. What made my blood pressure and temperature rise was the "Oh we didn't know that!" attitude so much in focus. Why didn't they know? Very possibly they didn't ask the patients, they didn't listen to the answers the patients gave, they dismissed things the patients did say, they didn't collect patient reports, they make no effort to analyse what patients say... And on and on.
This time, though, there is the possibility of a new medicine. They want to sell that medicine. Therefore, they have a vested interest in hyping up the suffering of patients.
High burden of hypoparathyroidism revealed in Web-based patient survey
“We know patients have numbness, tingling and cramps when they have hypoparathyroidism, but there are a whole lot of other things they reported as well,” Clarke said. “The surprise was these other things were so common and that they’re experiencing them so much of the time, even on treatment of calcium and vitamin D that currently is considered standard.”
Clarke also called for a deeper understanding and “awareness of what the symptoms are, what patients deal with and the burden of their illness, which, like diabetes, has a fair amount of complexity and complications.”
I have only grabbed a few quotes - worth reading the article in full (it's not that long). Though it is focussed on hypoparathyroidism, it rings all too many familiar tunes to any in the thyroid world. (Of course, quite a number have both - especially if there was a surgical intervention.) I'd also not be at all surprised to find some of the symptoms described actually being related to thyroid.