I had a GP appointment yesterday to discuss my "chronic fatigue" being hypothyroidism. I presented private blood tests which showed TSH of 4.73 (0.2 - 4.2) and thyroglobulin antibodies, basal temp. record averaging 36.1, TUK hypo checklist with 80% + ticked, and NICE guidelines. The net result was that my research was dismissed, my checklist symptoms deemed as being indicative of many things (though no further testing was offered to reach a conclusive diagnosis), and it being outwith my GP's control to offer any help beyond further TSH monitoring. I then pointed out my imminent IVF treatment was now postponed by my current state of health, and that ideally my TSH should be between 0.5 to 2. To obtain any treatment, my IVF clinic would have to write to my GP and, even then, treatment could be provided only for the duration of IVF/pregnancy! It is doubtful that my IVF clinic will do that as it is also NHS and apparently not particularly pro-active on thyroid/immunology issues. I have now paid £150 to have a private consultation at my NHS clinic, but, even if I do obtain a letter, it seems the solution would be temporary. My frustration is huge. Today my acupuncturist told me that several people she treats have had thyroid treatment stopped as their bloods were never outwith the normal range, but had sympathetic GPs. It seems as though there is a crackdown in the area.
Where do I go from here?
If I have to self-medicate I will. One ex-doctor mother (hypo) and this forum are so much more helpful than the NHS. I'm guessing a saliva adrenal test and ferritin test would be a good place to start to make sure all is well?