Hi all, I post on both sites as I have hypothyroidism and UCTD... with a few other things thrown in.
To cut a long story as short as possible, I was scheduled to have shoulder surgery on the 12th May. During my pre-op assessment and appointment with the anaesthetist, it was discovered that I had dangerously high BP and blood in my urine and was put on antibiotics - obviously my surgery was cancelled.
Since then, my GP withrew my HRT (premarin) overnight with no tapering (I had been on for 15 years) to see if this was contributing to my high BP. After two weeks of it rising ever higher (215/92) the GP started me on 2.5 mg felodipine which I took for 2 weeks but not really effective.
As well as massive headaches and blurred vision, 10 days ago I started with horrendous chills/ sweats / flushing / fast pulse/ tremors / dizziness / insomnia/ feeling jittery and a heart that felt it was going to burst out of my chest. After being backwards and forwards to practice nurse for BP checks, I ended up in a bad by the end of the week... my heart was banging so fiercely in my chest it was impossible to sleep for 4 nights and I was exhausted. I don't know how I got through the weekend.
Last Monday by a miracle I managed to get the last appointment with the GP for that day. My heart was pounding fiercely as I waited and I felt I was going to pass out. The GP took my BP which was 222/ 114 amd my pulse was 116bpm...he dialled the local hospital immediately and I was admitted until mid day Tuesday.
I asked the nurse on my admission to do TFTs but they didn't. However they started me on ramipril and upped the felodipine. I was discharged the following afternoon with a monitoring package in place for later in the week as my BP had lowered enough to come home though my heart was still banging in my chest intermittently.
On Thursday I went to what was called an ambulatory clinic (nurse practitioner led and supported by consultant who admitted me) where my BP was checked and my symptoms recorded. I asked again to check my Thyroid function as I am sure the withdrawal of HRT can affect the uptake of it. The nurse put this to the consultant looking after me and lo and behold (they rang me on Friday) to confirm that it looks like I was now over medicated! They had spoken with endocrinologist who said I must stop my 100mcg of thyroxine for 3/4 days and begin a lower dose (75mcg).
On Thursday I had ultrasound on my kidneys /bladder/ aorta which were fine
This week they are organising 24 hour ECG / 24 BP, ophthalmology appointment, and two lots of 24 urine collection to check there are no nasty things on or in my adrenal glands. I am to go back to ambulatory clinic this Thursday....as well as dropping off my 24 hour urine collections as and when.
Obviously, I am so pleased that they are taking things so seriously and covering all bases now. However, I have just spent this weekend still light headed and jittery and have episodes of banging heart especially with walking upstairs, though since stopping the thyroxine yesterday, these symptoms are improving. I have never felt so unwell but I have been told, if I had not have been booked for surgery, then I was at risk of heart attack or stroke.
Do all you good people recognise these symptoms? Is there anything I have overlooked?
I would like to start taking my reduced thyroxine at night now (always taken in morning with water on rising for 12 years) as I now have to take the BP meds of a morning. Since I wont be taking it now til Tuesday, is this a good thing or should I leave my usual routine in place?
I apologise for the very long post and appreciate all the support form both sites (Thyroid UK and Lupus UK) for all your generous support since I joined ... with a special thanks in particular fro Keyes.