I don't think I am diabetic.

[carolr]

I had a endocardiogram on the 13th of last month.

I have heard the contrast dye they use in MRI machines can stick and cause all sorts of things.

This was done in a CT scan of some kind a wire was put up my arm to my heart.

The contrast dye was a type of iodine. I have had other scans with iodine.

I was 9.3 on the day the following day I had a gloucose of 7.0

I had extreme pain in both my legs from top to bottom.

A doctor said that the kidneys were effected. Another said it was a allergy.

I was very ill and still am everyday

different. I had neurological symptoms or could not swallow.

The instructions where not to take metformin for 48 hrs.

Everytime I have tried to start my metformin I get leg ache.

And I think it's making too much uric acid. My urine is acidic.

I've tried to take allopurinol but not much is happening.

I have adrenal problems with 11 Hydroxcortisol missing hence produce too much total cortisol.

The cortisol puts the insulin level up.

I have been low T3 for years.

It's been diagnosed recently with the Genova urine test.

Any idea what s happening my Gloucose is around 9 for the morning.

4 years ago I had high gloucose 17 I was told I needed to go on insulin.

I think the raised gloucose is linked to infection.

Then the level went back down to 6 with metformin.

I will leave it there.

[eeng]

Urine is naturally acidic. The acid it contains is called uric acid. The more you drink the more dilute the acid is, but it will always be a bit acidic. That's normal.

[Hidden]

Hi Carolr, it's really complicated and I'm sorry you've had to go through these unpleasant procedures. We shouldn't take any kind of iodine if we're hypo, I know I read somewhere. Also metformin lowers your supply of B12 so I wonder if that's adding to your neuro problems.

I'm allergic to iodine, I have to have the pink one on my skin before surgery, can't remember what it'd called. Could you be allergic? It's on my notes but a locum gave me ear drops with iodine in and it burnt like crazy and I felt very poorly. Could this be you?

I know from experience as I'm pre diabetic, that when you get around 6, the doctors get twitchy. Adrenals as you know also helps control blood glucose and I wonder if you're on any treatment?

Low T3 isn't good for anyone, are you on levothyroxine? I wonder with your adrenal problems if this is affecting conversion?

Are you drinking enough plain water? I think you have to avoid foods like spinach, and asparagus, aren't these high in oxylates? Sorry can't remember the right word. Can't you get gout with high uric acid? Or am I barking up the wrong tree? A good starting point would be to be well hydrated and see if it makes a difference. I drink 8 half pint glasses of water a day, it may help?

With the levels of glucose you've had, you're obviously diabetic, but maybe if you removed the underlying cause, I wonder if you'd get improved blood glucose levels? Is there a treatment for high cortisol?

[LinDonaldson]

Hi there,

I am a type 1 diabetic and my thyroid does not function at all (Hashimoto's many years). Blood glucose levels (BGLs) or as I call them Biggles can vary from day to day for a number of reasons. Stress whether environmental or emotional can of course play a huge part of elevated BGLs. So a procedure such as yours could have raised the biggles bar fpr a number of reasons. There are links between hypothyroidism, iodine and diabetes but the research I have read has shown that low BGL can occur with too much iodine. It was a small study an not to be relied on.

My best guess is that you are quite stressed and that is not surprising. I hope your procedure brought good results. You also say you were given metformin. Are you not taking it now? You say it causes pain but maybe things will settle down over the next few days as the iodine leaves your system. The good thing is that your BLG might be a tad high but you are within range. You should monitor just before a meal but not obsessively. Go back to your doctor and raise your concerns about being diabetic or not, show your recorded BLGs over a week and ask to see an endocrinologist. However, as you say you are taking cortisol so your BGLs might be on the high side. So possibly you have had in the past chemically induced type 2 diabetes. Your BLGs seem quite reasonable considering.

Tests involving iodine are always nasty. Our bodies, even when the thyroid is functioning "normally" only need a small amount of iodine daily and iodine infusion can only increase the risk of a toxic dose. It seems to me that it depends on the degree of hypothyroidism how much iodine we should consume. I do not make T4 and I have difficulty converting T4 to T3. You say that low T3 has been confirmed by a blood test. What does your doctor say? If you have low T3 then your legs will very possibly hurt and you will feel joint pain and cramps. When I have had a test involving dye being injected/infused I have had painful legs for days. After all the stuff has to travel through the veins which are very narrow and if you have poor circulation the problem pain become worse.

I have certainly found that I benefit greatly from a low iodine diet. I do take some iodine in food because it is required by certain body tissue even when the thyroid does not work. I avoid the artificially chemical as much as poss. Go to thyca.org/ to find a low iodine recipe book and tips about iodine and metabolism.

I am going to have a heart bypass op this Friday so will not be around for a few weeks.

My best guess is that you should eat a really healthy low refined sugar and low iodine diet, drink loads of water, eat bananas and satsumas, watch some good films and feel the good will and healing thoughts we are all sending you for the next few weeks.

Seek advice from your doctor about thyroid meds and referral for help with diabetes and thyroid treatment if she/he does not help change your GP.

Regards

Lin

[carolr in reply to LinDonaldson]

It's hard to tell what's happening. I have now come out in a rash in various places.

It certainly feels like an infection for now my legs ache. The gland is up behind the knee. My bloods been about 9 even without food.

I still dare not take the metformin.

For making it worse.

I am hardly able to go out.

I had to ask someone to serve me in fount of the counter. Just could hardly stand in a que.

I can't get in a bath not able to coordinate to get into it.

[LinDonaldson in reply to carolr]

Hi,

I am so sorry you are experiencing such dreadful symptoms..Can you not talk with your doctor? It does sound to me that you need more help than you have had. Do go back to the doctor list your symptoms first and any questions you have as well as asking for answers to these questions. Such questions as can you give me an accurate diagnosis and treatment are important as well as asking about where to seek further help and will he or she arrange it NOW. Do you have someone that can go with you because the authority of another person almost always makes a big difference? Always ask for a double appointment in situations like yours.

If you are not satisfied complain to the NHS. Contact SEAP at this link seap.org.uk/services/nhs-co.... they may not be able to provide advocacy where you live but they will inform you about other agencies. I am being helped by ICAS a local charity to make one very large complaint against NHS standards of care and negligence.

If not satisfied with GP after your visit go to A and E and demand to see an endocrinologist. Go in the morning Monday to Friday or you do not have the proverbial "cat in h..ls chance" of seeing anyone who can really help.

If you feel you do not have good levels of care you can contact the access team at adult social services and they will do a care assessment. They will then organise a care worker to come in to provide emotional and practical support if possible. I have had to do this recently and am more than surprised at the kindness and understanding shown. The additional care has made the difference between my going to A & E and staying as well as possible. You can always ask carers to note symptoms which can be used in evidence if necessary.

I really do not have any further advice to offer. I am being admitted to hospital on Thursday for major op.

I wish you every luck with your health.

Regards

Lin

[carolr]

A&E has little to offer.

They had me on the ward twice over the last 6 months.

The rehabilitation nurses are called for one said I want treatment not rehabilition. Another the psychatric hospital or on line shopping if I can't cope.

Lyme slows the immune system up. So does low thyroid.

If your temperature does not get above normal then there's nothing wrong.

[carolr in reply to carolr]

I've just been to A and E for the enth time yesterday.

One young doc thought my legs looked as though the circulation

Had gone bad. But told me to see my own GP. I left it a day my legs are so painful. My bloods were normal even with infected legs they just look at the bloods.

The GP was not at home..

I asked to try some sort of penicillin.

She said there is no infection.

I was so distressed I went to A and E.

The nurse who shouted at me a few months ago in treearge

Said your next to see the doc.

I waited another 2 hours to be seen.

Two emergencies came in.

The nurse came over to us patients and explained this.

Eventually I saw a large Eastern European lady doctor.

Who said the pain in my legs is Neuropathy.

It's to do with diabetes.

The metformin making your legs ache is part of the neuropathy.

She said my family all suffer neuropathy and unstable diabetes.

Where the metformin does not work. High blood sugar she said.

(Cause there are other processes going on)

And the medical profession have tried to fit one size fits all.

I also have a genetic foot problem that goes with neuropathy and pituatury. It's called Marie Chariot Tooth disease.

Where the toes curl and the instep is high.

Neuropathy is not only diabetic but allergies and insect bites and chemical as well as drugs can cause it.

The lady doc brought in her consultant who shook my hand.

And said you should of been sent to a dermatologist ages ago.

(I have got a dermatologists appointment by chance. Privately on Monday.)

But the GP didn't want to refer me she said I had enough money spent on me. Meaning the heart scan and I was making a fuss over nothing.

My legs are only to do with your weight she said.

She also said your not going to get a quick appointment.

I had a choose and book for the 28th Aug.

I went back and said my legs are worse but all another doc said it's not cancer.

Meanwhile the two A and E docs said Flucloxcillin 500mg 4 times

aday for a week. All this for no infection and a weight problem?

My blood is normal therefore I have no infection.