Wanted – recommendation of doctor who is not fr... - Thyroid UK

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Wanted – recommendation of doctor who is not freaked out by suppressed TSH

Ansteynomad profile image
17 Replies

That’s it really. My last set of results on 125mcg levothyroxine:

TSH (0.35-6) <0.02

FT4 (9-26) 24.8

FT3 (2.8-7) 5.9

GP is completely freaked by this. He will grudgingly prescribe 100mcg (because I refused a reduction) but really wants me on 75mcg. On 125mcg I am well. I already know from experimentation that 150mcg is too much, so I am satisfied that I have found my ‘sweet spot’.

GP says it would be unethical to prescribe 125mcg because of the suppressed TSH and the dangers this presents. He is not interested in anything Dr Toft has to say.

GP is desperate to refer me so that I become someone else’s problem, but where to? I am midlands based, but willing to travel.

Any thoughts, please PM me. Thanks.

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Ansteynomad
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17 Replies

Right so it is unethical for you to feel well. I know of an nhs endo who accepts suppressed tsh - dont know if that helps. Otherwise i can recommend a private gp in london but frankly it is cheaper to slef medicate

powderpuff profile image
powderpuff

Did you check out the private GP in London I recommended a couple of months back?

Ansteynomad profile image
Ansteynomad in reply topowderpuff

Remind me ...

powderpuff profile image
powderpuff in reply topowderpuff

Have sent you a PM.

shaws profile image
shawsAdministrator

email louise.warvill@thyroiduk.org who has a list of NHS Endos. You may have to travel but it may be worth it. She also has private doctors.

If only doctors could treat us as Dr Lowe and holistic doctors do - see first question:-

web.archive.org/web/2010103...

Ansteynomad profile image
Ansteynomad in reply toshaws

Thanks Shaws, I’ve had the list, but frankly there isn’t really enough information on there. In particular there is no information on there about whether any of the doctors mentioned is comfortable with a suppressed TSH.

What I can’t afford to do is go and see someone who then reports back to my GP that my TSH is suppressed therefore I am over-medicated!

Effectively, I’m looking for someone who will support my view, the view I have gained by reading the research, that a suppressed TSH is not a problem if FT4 and FT3 are within range.

shaws profile image
shawsAdministrator in reply toAnsteynomad

I understand. Hopefully a member can private message you if they have found a sympathetic person.

LouiseRoberts profile image
LouiseRoberts in reply toAnsteynomad

Sorry - I can only pass on the info we are given.. :( xx

rosetrees profile image
rosetrees

Anstey - I've sent you a PM

puncturedbicycle profile image
puncturedbicycle

Is it possible to edit the results and ranges a little to make them easier to read? :-)

LouiseRoberts profile image
LouiseRoberts in reply topuncturedbicycle

YUP! Done... x

Ansteynomad profile image
Ansteynomad in reply toLouiseRoberts

Sorry - I hadn't realised they weren't clear.

LouiseRoberts profile image
LouiseRoberts in reply toAnsteynomad

No worries - I've just added in some spaces.. :) x

Glynisrose profile image
Glynisrose

Suppressed TSH is NOT dangerous, too little medication IS!!

Ansteynomad profile image
Ansteynomad in reply toGlynisrose

You know that - I know that! However GP is a slave to TSH and wants someone else to make the decision.

Clutter profile image
Clutter

Anstey my TSH is kept suppressed, as is normal for most patients post thyCa. Ask your GP why it is not a problem for thyCa patients but is for hypo patients? I've not been advised that I'm in danger of heart or osteoporosis problems because of suppressed TSH but was advised of the danger of cancer recurrence when I insisted my Levo dose be reduced. I'm expecting TSH to be suppressed now that I'm on T4+T3 combination.

If your GP refuses to prescribe the dose you are comfortable on then buy it online. Your GP might change his/her mind if you say this is your intention. I most definitely would not allow my health to deteriorate to satisfy a medic's prejudice. PM me if you need a source.

Ansteynomad profile image
Ansteynomad

Thanks

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