Endo yet again: SO....I wrote on here a few... - Thyroid UK

Thyroid UK

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Endo yet again


SO....I wrote on here a few months ago about my up coming visit to the ENT person. I have a diagnosis of Hashimotos disease, which is an autoimmune condition PLUS; I have an overlap of two autoimmune liver diseases. I went to see the ENT.....he had done another fine needle biopsy of the second new nodule, no cancer thank goodness.....his idea was to refer me back to the endo I saw in May last year who sent me home suffering with T3 toxicosis. I said to the ENT...if you send me back there I will spoil my manners because they did not listen to me and they sent me home rather unwell...I was quite obviously unwell when I went last May and it was simply pushed aside.....anyhow I have received an appointment for June....

I am so stressed because I know they will not help me..I intend to say to her that I have come to see her because the ENT has gone out of his way to arrange it, but I don't think she will help. I will explain that I am very symptomatic with constipation, hairloss under arms low basal rate temp digestive trouble and oh; I think my bodies thermostat is broken because I seem to be running on cold or freezing. I am just so sick of feeling unwell and explain that I have been like this for over 20 years. I will tell her that I have done substantial research and have found out some amazing things over the last 2 years for example, there is a direct link between Hashimotos disease and autoimmune liver disease of which I have two, AIH/PBC, and am certain in my heart and mind that if my hashis had been treated all those years ago, I would not be in the position I am in now.

This is a true statement: I finally got diagnosed with Hashimotos in Jan 2012 and in March 2012 I was really ill and spent several weeks in hospital. I was diagnosed with autoimmune hepatitis and primary biliary cirrhosis so everything at once; not a coincidence.....ENT suggest there is scope to treat my thyroid to reduce the size of the nodules I have; I also need to ask about secondary thyroid issues because on one occasion, the occasion I had T3 toxicosis; I had no measurable TSH; it did not show at all despite the TSH test, so that to me screams pituitary....I will then ask if she is in a position to help me and if not will she kindly refer me back to ENT so we can decide what my next steps are.

I will have the thyroid removed if I get no help this time and, as the ENT said, they will have no choice but to treat me, after my thyroid is gone. ......what does it take to be well.....I feel awful most days with extremely poor recovery time, for example; I went on a day out on Saturday and the walking round has completely depleted me so am still resting up. I know this is also a combination with my liver disease, but believe me when I say that I know how each symptom affects me and to which autoimmune culprit it belongs.

Any suggestions of things for me to ask when I go would be very welcomed...I am just so fed up.....want to feel normal again.

Thank you


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