Thyroid UK

I have underactive thyroid and I have numbness to all of my body and loss of sensation also. I have been to doctors and can't find a reason

For this to come on suddenly I just wondering if it could be related at all to my throyid. My last two results were

Tsh - 0.21 t4 - 22

Tsh - 0.16 t4 unknown

Ranges are 0.3- 5.5 for

T4 12-22

I am really keen to do d out what is causing this so I can get sorted.

Thank you for your response in advance

17 Replies
oldestnewest

Have you had any other blood tests? Specifically full blood count (FBC), B12, folate etc? Numbness could be B12 deficiency:

b12deficiency.info/signs-an...

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I had blood tests yesterday and everything came back normal. I was told to rest and hopefully it will go! I had ECG as well and again all normal which is good but also frustrating as I don't have any answers

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You need to ask for copies, see exactly what they have and haven't tested, and see where your results fall in the range. x

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Ok thanks I will do this.

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are you taking levothyroxine

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Yes 75 one day and 100 the next .

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my suspicion is a reaction to levothyroxine and probably because its been made by mercury pharma

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Really. I have been taking it for nearly five years. How come it would only happen now? I have never experienced it before . Thank you though, I will certainly explore it though

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Have you taken notice when given levothyroxine by whom it has been made?

Sometimes if you have been doing well on it you wouldn't notice the manufacturer. Sometimes there is a change in fillers/binders which is what causes people to inform the MRHA of problems of a particular levo.

Has the doctor done blood tests for B12, Vit D, iron, ferritin and folate. If not, request these as they can be low.

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I used to take liquid but it was to expensive so it was changed in December since I have been on the tablets I have not been in the correct ranges. I had blood taken yesterday but I did not ask exactly what they tested for . I just assume they did a general test.

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The GP will have to think of an alternative if you've become unwell since the change-over. Maybe one of these would suit:-

thyroiduk.org.uk/tuk/treatm...

Also low B12 etc can give us symptoms.

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If your problems have arisen since your changeover from liquid levo, it seems to me your prescription doesn't suit you.

There are a couple of other levothyroxines your GP may wish to prescribe. If they don't work, I would write to my GP as you have proven that the liquid levo suits you

thyroiduk.org.uk/tuk/treatm...

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Thank you for all your responses, hopefully this will go on its own . I have another appointment Monday if I can last that long ! I can live with my ranges not being right but the numbness and loss if feeling is horrible

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theres been many complaints about mercury pharma stuff

plus you may be allergic to chemicals which is precisely what levothyroxine is made from

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How would I find out if I am allergic to it ? Would they do a blood test ? I just stop taking medication to see if I regain feeling

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get b12

ferritin

folate tested first

but find out what make of levo you have been given and with next prescription find a chemist who will supply a totally different make

do not just stop taking them or you will have all the hypo symptoms too

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Hi, I had loss of sensation to my hands and feet. My b12 levels were in range but low. Once I got my b12 levels high in range my symptoms disappeared. Good luck x

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