I have underactive thyroid and I have numbness ... - Thyroid UK

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I have underactive thyroid and I have numbness to all of my body and loss of sensation also. I have been to doctors and can't find a reason

Ter1 profile image
Ter1
13 Replies

For this to come on suddenly I just wondering if it could be related at all to my throyid. My last two results were

Tsh - 0.21 t4 - 22

Tsh - 0.16 t4 unknown

Ranges are 0.3- 5.5 for

T4 12-22

I am really keen to do d out what is causing this so I can get sorted.

Thank you for your response in advance

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Ter1 profile image
Ter1
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13 Replies

Have you had any other blood tests? Specifically full blood count (FBC), B12, folate etc? Numbness could be B12 deficiency:

b12deficiency.info/signs-an...

Ter1 profile image
Ter1 in reply to

I had blood tests yesterday and everything came back normal. I was told to rest and hopefully it will go! I had ECG as well and again all normal which is good but also frustrating as I don't have any answers

in reply toTer1

You need to ask for copies, see exactly what they have and haven't tested, and see where your results fall in the range. x

Ter1 profile image
Ter1 in reply to

Ok thanks I will do this.

Ter1 profile image
Ter1

Yes 75 one day and 100 the next .

Ter1 profile image
Ter1

Really. I have been taking it for nearly five years. How come it would only happen now? I have never experienced it before . Thank you though, I will certainly explore it though

shaws profile image
shawsAdministrator in reply toTer1

Have you taken notice when given levothyroxine by whom it has been made?

Sometimes if you have been doing well on it you wouldn't notice the manufacturer. Sometimes there is a change in fillers/binders which is what causes people to inform the MRHA of problems of a particular levo.

Has the doctor done blood tests for B12, Vit D, iron, ferritin and folate. If not, request these as they can be low.

Ter1 profile image
Ter1 in reply toshaws

I used to take liquid but it was to expensive so it was changed in December since I have been on the tablets I have not been in the correct ranges. I had blood taken yesterday but I did not ask exactly what they tested for . I just assume they did a general test.

shaws profile image
shawsAdministrator in reply toTer1

The GP will have to think of an alternative if you've become unwell since the change-over. Maybe one of these would suit:-

thyroiduk.org.uk/tuk/treatm...

Also low B12 etc can give us symptoms.

shaws profile image
shawsAdministrator in reply toTer1

If your problems have arisen since your changeover from liquid levo, it seems to me your prescription doesn't suit you.

There are a couple of other levothyroxines your GP may wish to prescribe. If they don't work, I would write to my GP as you have proven that the liquid levo suits you

thyroiduk.org.uk/tuk/treatm...

Ter1 profile image
Ter1 in reply toshaws

Thank you for all your responses, hopefully this will go on its own . I have another appointment Monday if I can last that long ! I can live with my ranges not being right but the numbness and loss if feeling is horrible

Ter1 profile image
Ter1

How would I find out if I am allergic to it ? Would they do a blood test ? I just stop taking medication to see if I regain feeling

girlfoley profile image
girlfoley

Hi, I had loss of sensation to my hands and feet. My b12 levels were in range but low. Once I got my b12 levels high in range my symptoms disappeared. Good luck x

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