If you don't do well with a low TSH and you are only taking thyroxine, that might mean that high levels of T4 are making you feel unwell? So NDT or extra T3 might help.
Yes NDT has T1, T2, T3, T4 and calcitonin in it so is supposed to replace everything that a working thyroid gland would naturally make. I think if you introduce it slowly / exchange it for levo with careful monitoring you shouldn't overload your system. Think you need a blood test first though before making any changes.
You don't have antibodies do you? Wondering if you have Hashimotos?
On the other hand, maybe you are still overmedicated and need to drop your dose of levo to see your TSH rise again. I would get a blood test with fT4 and fT3 if it were me. Sounds all very confusing susiebow! x
Hi Diamond Fire ,yes you are right very confusing.Thanks for your help.I think I will reduce dose a little.I asked gp to do t3 t4 and no results as yet if any.Yes I have got antibodies and have Hashimotos ,never really been all that well for 11 yrs but coped,went hyper 6 months ago and not felt well since ,been off work for 6 months and crawling back to work now.
Just a thought and something to be aware of. If you are not converting T4 (which i wasn't) you need to take T3 and may need to stop the T4 because of reverse T3 (rT3) being produced from it. I got slight improvement on T3 combined with T4 but dramatic improvement as soon as I stopped taking T4 and had T3 only. I improved each day as the rT3 cleared from my system. NDT is T4/T3 combination and you can try it, but if your problem with conversion of T4 to T3 is like mine, it creates rT3 which blocks proper T3 getting to the cells to produce energy.
I take T3 in three doses. 20mcg 6.45am, 20mcg 11.45am and 10mcg 4.45pm. Timing and dosage is different for each person but once you have the right pattern for yourself, keep it the same. The body adjusts other cycles to match and changing the time throws it about. I use an alarm on my phone. 30 mins late affects me and an hour late will make me bad (hypo) for the rest of the day. It needs a lot of discipline but if you do it right, the results are excellent. I found Paul Robinson's book 'Recovering on T3' very helpful.
I was fine on NDT; ill on T4, then ill on NDT. I developed a conversion problem and was getting thyrotoxic on T4. I introduced T3 while reducing T4 and got better. I'm now on 120mcg T3 and pretty good - at last.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.