having been recalled by the doc on T3 only bloods I expected them to offerT4 only again as per norm. I was surprised when an English guy mid 40's called me in.After looking at results he said I wont pretend you obviously know alot more about your thyroid than I do to which I replied most probably, doc well in that case I would not presume to second guess you treatment. Do you feel ok,me yes never better than when I stopped listening to doc and listened to my own body. doc in that case carry on with your 80mcg T3 and call in if there is a problem that you think we should be aware of. Result When I asked if he was a permanent he said sorry only a locum shame. Still at least T3 for now thank goodness.
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jacksprat
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you should get his name and complement [ in the right way ] to all and everyone that you can think of .....there are some out there in the ' caring profession ' that don't need to consult the dictionary to understand the word ...... so happy for you ....keep it up ..alan x
I changed docs when I moved and had first appointment ready to do battle to defend my taking NDT. Well he agreed I was well, said he liked high/normal ranges where most people felt well and happy to leave me to dose myself.!! So good docs do exist. Wouldn't prescribe NDT tho when asked. Cant have everything I suppose but dont see why not !!!! still its progress.
I wish doctors could get their heads straight on T3 and appropriate doseage.
There are those desperately trying to get it (stress!!) and others who have it and are scared it'll be taken away because the next doctor we see thinks it'll give us a heart attack (more stress!!)
I am very new to this. I have recently had my thyroid removed as I had a lump and the consultant was not 100% sure it wasn't cancerous - it was. He assured me it was all taken out!
You talk about T3 & T4 please explain. What should I be on? In the last 8 weeks since my op I have been on 125,150 and now 100 mcg of thyroxin. General aching and fatigue.
T3 is the active hormone, T4 is the inactive hormone. Thyroxin is T4. The theory is that our bodies should be able to convert the inactive T4 into the active T3 so our cells can use energy. Unfortunately many cannot covert T4 so remain unwell, hense many problems. I'm lucky - I do convert T4 well, so I became well again - although this took many months to recover. Go onto thyroiduk website and you will read a lot more about it!
Have only just tuned in to your post.....but absolutely happy how things are going for you.Let's hope that there might be more like your locum out there.....I really do have an optimistic feeling about the future......have seen Liza's reply for you too and wondered if the T3 has started getting through for me to become active ?.... How long does it take ?
I started on T3 yesterday...it's early days for me and I'm expecting things to take a while before hopefully seeing a big improvement but.......I baked a cake this afternoon for my friends who are coming tomorrow and at 6.30pm tonight I took the vacuum cleaner out and vacuumed the lounge,hall,kitchen and shower room and wiped two floors over.I then sat down with a snack and cup of tea not even feeling tired and said to myself ...Is this really happening ?
I sincerely hope that T3 becomes available for all who need it....what a difference it would make to us all. Keep well .
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Hi marfit - I'm interested to see you've started on T3! I've never used it and at present there's no need for me but I believe it is an instant improvement as it's active and goes straight where it's needed. Your day seems to confirm this belief! I shall be interested to see what happens next! Do you take it once a day or split over the day?
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Hi Liza.....good to hear from you and hope you are keeping well.
Having just started ...( 3rd dose this morning) I am only taking 10mcgs T3 which is a split of a 20mcg tablet and I take it between 6.00-6.30am before getting up.Then I can have breakfast
7.00- 7.30am.My Endo has been so good ....ordered the FT3 test on my first visit ( though took twice ordering it to get it!!)
The explanation you were giving about T3 last night couldn't have been more relevant as I felt an immediate new lease of energy.I still need further improvement in my muscles,especially my legs but it's early days yet.
I'm using 2 pill cutters at the moment as also using 75mcgs Actavis Levo,so have to split a 50. however,I don't see my Endo until July now but if all goes well I shall ask if I can drop the Levo down to 50 and increase T3 to 20 which probably would have to be divided into 2 doses during the day.
I was thinking of you the other day when I was watching the birds in my garden.....the swallows and swifts will soon be back .
Hope you are enjoying life X
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Yes I am enjoying life and really well. I'm really active again, spending hours outside gardening and taking part fully in my dance classes and skipping four time a week - 45 minutes each time! To be honest, I NEVER thought I'd recover enough to skip again - certainly not at that level. What took the time was regaining muscle strength slowly and safely - this is why in my opinion, swift diagnosis and early/appropriate treatment of thyroid issues is so important - less damage is done... I'm looking forward to seeing my dancing housemartins again!
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Whoops!! I got the wrong bird! ......How lovely to hear what an amazing recovery you've had Liza.Long may it last.At least we are now better informed and will be in control of our own health in future.
I totally agree about the early diagnosis being so important and something that our GPs need to be made better aware of.
In my younger days I used to belong to a very good keep fit class and the skipping routines were my favourite.
Our tutor was a very good choreographer and I loved the movement to music.We actually had the experience of performing on the floor of the Royal Albert Hall. Now that I am older and much heavier,the Water aerobics have taken it's place.
However,I'm hopeful that With diet,T3 and exercise I might feel a lot better soon.
I wish you well X
• in reply to
I think it was me who got the wrong bird - they turned out to be housemartins in the end! I think there may be changes in the NHS towards shared management - my GPs now ask what I want - I may not get it - but at least they ask! Jacksprat's locum is the way to go! I'm pleased you are on T3 - it sounds as if this is better for you. Wishing you well too! xx
• in reply to
Thank you X
This is great news - lets hope this locum travels nationwide!
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still its progress. 
My Endo Consultation Disaster…. No T3 for me. 
Very happy and new info:-) 
Follow-up to taking Control - Extremely angry with Doctor, I'm almost in despair.
Why have they taken away my T3?
HOW TO SLOW/CONTROL T3 CONVERSION? 🤔
