What kind of symptoms did everyone have with vi... - Thyroid UK
What kind of symptoms did everyone have with vitamin d defiency that resolved when your vitamin d levels resolved? Thanks.
Aching and painful muscles and joints were much improved after I started a decent level of vitamin D supplement. And I wasn't even seriously deficient to start off with.
I thought I might be developing arthritis of some kind, but now I no longer think that.
Do you remember what your levels were? If you dont mind me asking?
Oh, my levels were 30 mg/lu
Massive pain in my elbows, so much so it was diagnosed as Fibro. Early days yet, but Im taking adical and my own 5000 vit D supplements and there has been a reduction in pain.
I could literally feel every tendon in my elbow when gripping a mug, my grip strength was negligible, even though I have 'teddy bear hands' . My endo said it was due to going on replacement and the nerves in the tendons being pressured. I'd been on replacement for 2 years at this time. So 9/10 for BS Endo ,1/10 for perceptional diagnostics 
How much Adcal are you taking ? as that plus 5000iu could push your calcium too high which is bad. Adcal is not usually given for low Vit D as it's not really the right supplement unless you have kidney problems or low calcium.
My calcium was baseline 2.1, my Vit D was 30. Im low on both and the Vit D in adical isn't a full dose, so whilst Im still experiencing pain, I'll top up with my vit D 
I was taking supplements before my bloods were done ,so god know how low I had really gone previous to that.
Thats good then, do keep a watch on your calcium though as it can rise quite quickly.
My Vit d was 12 and I can't take supps as my calcium is high, bit of a bummer.
Hope you feel better soon.
Have you got hyperparathyroidism then?
Do you have hyperparathyroidism then? parathyroid.com
Yes i do have hyperpth
Some say the body lowers levels of vitamin D if calcium becomes to high........like LilyMay said, Hyperparathyroidism could be an issue.
I got vitamin d that doesn't contain calcium
I'm afraid that doesn't protect you - it's the vit d itself that can cause calcium levels to rise, so essential to get them tested regularly.
Ah I see the doctor didn't even tell me I had a deficiency it was the receptionist do I'm still learning . I've to get a calcium text next week after I've been on them a no then then at 3 months and 6 months . I do t even know that my calcium level is yet..
Any vit d supp with or without calcium will raise calcium levels. I had Fultium but can't tolerate it for more than a week at a time.
That's what im on 8ooiu a day 1 pill. What are the side effects you have with them?
Nausea but that happens with high calcium as well so either could be the cause but taking the Fultium makes it worse. Are you managing to take them ok ?
Seem ok but I've not felt right since years ago . Definitely not feeling nausea tho :? Normal tsk so I asked for vit d as I wanted more tests
Mine was 10 (severely deficient) and I had sore hands and poor/painful grip. I bought fingerless gloves to type with because the back of my left hand in particular used to ache when cold (and they were/are always cold). I noticed it came back recently and resolved when I went back to taking supplements again (I had stopped as not to skew a blood test).
Definitely bone pain for me, particularly in my feet. To the point I could barely walk when standing from a seated position. I had to stand for 5 mins, let the pain ease and then hobble off! I have been taking Vitamin D tablets since December and the pain did ease for a bit but its back now so wondering whether it could be something else and not Vit D deficiency. I was borderline ranging to insufficient by Blue Horizon ( I think it was 44 at last reading).
What symptoms are you getting? Have you been tested? x
I have i was 39 in september after a summer in shorts but focused on my thyroid . Now ive took another test im 20 so starting to take supplement my gp told me get in sun lol we dont have any. Mainly fatigue and muscle weaknessfew aches .
I was blood tested low in vit D and Doc prescribed me 1000iu of D3,
Two days after taking the D3, I was surprised that my chronic Tailbone pain eased to almost non existent, I wasn't expecting the D3 to connect with my tailbone pain, but then two weeks later the pains came back, but was of a far lesser pain than before, so I bought a higher dose and two days later the pain dissapeared completely. Now it niggles every now and then, but I know D3 works for me. Also my restless leg syndrome has gone.
I put Hubby on it for his leg cramps and two days later his cramps had eased, later he forgot to take them for two days and his cramps came back with a vengeance, same happened again a few weeks later.
I had the same happen when I forgot to take my vit D3 so I can definately say they work for us, but do make sure you get your vit D bloods checked.
I get my vitamin d checked with the city assay online . It was 20 nmol or about 8 ng last week.
Good Girl sezzy what is the cost with city assay online ?
How much does it cost?
Orders for kits after 1st April 2012:
£25 to UK/Ireland
£30 Overseas
Bulk Orders : We offer a discount for orders of 10 or more kits, paid by credit/debit card at the time of order (£20 UK/Ireland and £25 Overseas).
Rod
Thank Q helvella 
Are you still having tailbone pain?
Thankfully no, but if i forget to take my vitamin D3, tailbone pain can come back later the same day to remind me to take my supplement.
What's the dose you are taking and how often... I'm having tail bone pain too with vit D 60 k twice a week
Hi water_123, that is quite a high dose you are on, did your Dr prescribe 60,000iu x2 a week ? My body soon tells me that I need 10,000iu in winter, but only 5,000iu in warmer months when I get the warm sun on my skin, (vitamin D3 the sunshine vitamin) Might be needing some vitamin K2 which is well known to go hand in hand with vitamin D3. (I take 100mcg of K2 for each 5,000iu of D3) and magnesium helps vitamin D along too, magnesium acts as a relaxer, (magnesium taken at night helps relax the heart and promotes sleep,) maybe it could help relax your tailbone ? Most of us are apparently lacking in magnesium as well as vitamin D3. I take my vitamin D3 daily because if I forget to take my D3, my pains soon kick in again by the end of the day, I vaguely recall a study where taking a daily dose of D3 was better than a larger weekly dose, but it was a long while ago, so I might be wrong, do check it out yourself, also we are all different what works for one might not work for another. I remember my Dr. Saying there were two types of tailbone pain, mine was the one where I have to move frequently from cheek to cheek when sitting down to relieve the pain, I remember reading about the other type of tailbone pain, but cannot recall the symptoms or how they diagnose it. Do hope you can get some relief soon.
My vitamin D was 20.7 nmol/L, and I really had to push to get the blood test, I was feeling so unwell. I am two months into taking 1600 IU D3, which I think is pretty low, but that is what the GP prescribed on advice from the endo.
I had the most unbelievable aching all over, particularly my joints. It felt as though my bones actually ached too, the pain was really so awful. My muscles visibly twitched, my legs moved independently - I had/have many other symptoms which may or may not be associated with vitamin D deficiency. Overall, many of the symptoms have lessened, but are enough for me to still worry about them.
The endo said that I obviously had a dietary problem, but didn't bother actually finding out how I ate; and a GP reckoned a "bit of sun" would sort it, although I was out and about all last summer.
If I am lucky, they will test me again in a month, then again in three months after that. Then, if I am even luckier, they will address my iron deficiency (endo wants to deal with each deficiency by itself). They are not interested in my very low B12 as it is, technically, still in range.
Mainly my muscles seem to be weak and im quite fatigued but could be my thyroid my vitamin d was same as your im starting with 1000iu and going to gradually get up to 4000iu for 2 months ill recheck ny vitamin d and thyroid then ive read vitamin d helps with thyroid function .
Thanks for reply.
It's so impossible to figure out which symptoms relate to which deficiency, and then you have the thyroid symptoms too. My NHS endo only agreed to do tests because I was such a nag, I was a bit smug when the tests came back proving that I wasn't a hypochondriac.
I understand why the endo wants to deal with one "problem" at a time, but she isn't the one feeling ill. I am making sure that I eat really well, and have my daily 30mins in the sun (ha ha!) so that no-one can blame my lifestyle for my deficiencies. I don't think she believes that having a duff thyroid can possibly be responsible for any of them.
Are you having to treat yourself without help from your GP even though you are obviously deficient?
My gp doesn't believe in vitamin d defiency even though I stated nhs guidelines I'm working on them it says for under 25mnol a person would have 300,000iu over 8-12 weeks so I divided it and came to about 5000iu a day to be safe I'm going to do 4000iu and retest in 8 weeks .
I don't understand the "doesn't believe in vitamin D deficiency", how ridiculous. I remember learning about why we need vitamins in primary school, I did a project! It is basic science.
It was my endo who agreed to get me tested, the GP just has to issue the prescriptions for me. I don't think either of them accept that it could be related to malabsorption because of my Hashimoto's (it obviously cant be thyroid-related, silly me). I still make sure that I make some sort of comment about malabsorption being a problem for some people like me, and hope that maybe they will read up on it and realise that I could, possibly, be right.
HI BeansMummy, I was interested to read your muscle twitching bit, I get this, either in my legs or my arms. Its so annoying and I can't stop it when it starts and it can go on for hours. I have recently had a full blood count and anaemia could be a possibility, coupled with the fact that all the women in my mums family have pernicious anaemia. But, Im still wondering whether all my symptoms are Vit D & iron deficiency for which I am being treated. You also say your bones ached, this is how I have been. My lessened for a bit in Jan/Feb when I had a holiday in Mexico and took 1600 IU Vit D for a week but they have come back now despite a daily dose of 800iu and a booster of 1600 once a month. My B12 is also still in range BUT they test Serum B12 and not "active" B 12 so be careful of this. Im waiting to hear from my endo as to which way we go next.
I thought I had a B12 deficiency as there is pernicious anaemia in the family, and the symptoms of both deficiencies seem similar. As my B12 is only low in range (according to the NHS), my GP says that she cannot prescribe anything for it, only for those things that I am "officially" deficient in, so only vitamin D for me for now. I am well aware that I need to boost my B12, but I know the GP isn't going to be a lot of help with it. I shall be trawling through forum posts reading up at some point. I know she will throw some iron at me soon, as I was out of range for it, lucky me.
The twitching is lessening in my legs, but it has started in my arms recently. It is driving me mad and the cat doesn't like it. None of it feels very nice, that's for sure.
Trouble is, Ive learnt that even though a blood test says you have B12 in range, it doesn't mean that B12 is getting to where it is needed in the tissue, thats why people have injections instead of taking tablets. Thats what I meant by having an active B12 test instead of the NHS serum B12 test which through my understanding isn't very accurate. I think there is a B12 spray which you can spray on your tongue and this sounds quite effective. Im waiting to hear from my endo as to which step I take next, as you say, symptoms are very similar but if you get desperate and can afford it, Blue Horizon do an active B12 test for £84. I believe you can get one on the NHS if you go to St Thomas hospital in London. Its funny, the twitching is not as often now in my legs, can't remember the last time but its coming in my arms more frequent. I agree with you, doesn't feel very nice!
It is more effective to spray liquid B12 under the tongue, not on top of it.
Edit : And try to hold it under your tongue for as long as possible before swallowing. I find this very hard to do, but I always try. 
I was vitamin D deficient very severe....it came to light when my hair started to fall out ....I've been taking vit D3 for nearly 12 months with a slight improvement..Dr is going to test me in June ..... I'm of the opinion they don't understand thyroid problems..and..I think everyone should be tested for vitamin deficiency it could solve a lot of illnesses...
I thought my D was not low due to my work I spend two hours outside everyday also I visit my family in South America during the 6 weeks summer holidays. I've been taking d3 for slime months. GP retesting it next month. My leg pains have improved and I'm off antidepressants.
My last blood test was 20 nmol/L L (50-150)
I was told by gp to take 1 x 1000 d3 a day, and I am taking it with its cofactors of magnesium and k2-mk7. I have aching bones all over, fatigue, weight gain and severe bloating and muscle weakness. My brainfog is so bad atm that last Thursday night I had gotten in my car to take my son to school for a disco night, but found I was becoming disorientated and took 3 wrong turns. While I have upped my thyroid meds after an over range tsh result 2 months ago, the symptoms are not getting better, so i think the Vitamin D deficiency might be the cause.
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