Been having palpitations again over past few days.I reduced my levo a while ago and they almost stopped. I have since increased it only a little and the palps returned.
I get so scared when they are occuring and cant focus on anything else.
Maybe i should reduce meds again?how does anyone else deal with them.
Thanks
Do you take the same generic levo always. If so, maybe try another one as sometimes the fillers/binders make a difference.
It's not nice, I know, I always had palps on levo, except Eltroxin but they don't make it now.
I get them from the same chemist but not sure what make they are.I will check this.
Because my t3 was outside the upper range i was wondering if its possible that my thyroid gland is still producing hormones. Is this possible when i have had the disease for over 3 years.
I was given beta-blockers but I have discovered that sometimes that interferes with the uptake of levo. If you felt slightly better when you reduced levo, maybe try that again as it may be enough. The main question whilst taking thyroid gland hormones is 'how do you feel' and if overstimulated cut back slightly' an increase may be warranted. That's how people used to be treated before the blood tests came in.
Someone may answer re your concern about a higher T3.
Thanks,,we do need to listen to our bodies.
Are your ferritin levels o.k. I ask because my heart palps have improved drastically now that my ferritin is where is should be.
If your T3 is over the range the you are more than likely over medicated, and if the palps go when you reduce levo slightly then this would back up this theory. Can I ask why you increased again if your palps were getting better, are you still suffering symptoms even though your T3 is high in the range, if so then surely your remaining symptoms, if you are still suffering any, must be caused by something other than thyroid issues.
It is so easy to blame every little ache and pain on your thyroid condition when you have this illness but the law of averages must also mean that we will, at certain times of our lives, suffer with other illness's as well.
Moggie x
I was on 100mg of Levo and had been for a while,the papls then started i had, my t3 was outside the upperendof the range atthis time. I then took 50mg for a few days and the palps got less and less but i was so heavy and tired. I then went onto 75mg and within a couple of weeks the palps have come back.
I cant remmeber the exact ferritin test result but i do remmeber it was on the low side as was my B12,iambeing tested again for B12 later this month.
Sorry must also ask if you have ever discussed this with your GP? If you check your meds and find they are the Mercury Pharma (MP) brand then this could be your problem as lots of use on here have had to stop using this particular brand because of palps.
Moggie x
I had a 24 hour ecg and it showed irregular heart beat but doctor not concerned.Ithenasked for a 72 hour ecg which i am having next month.
I have just checked my levo and it is Mercury....
Then changed to Actavis a.s.a.p. as MP is stronger, which will be pushing you over medicated again. Either that or reduce down again.
Moggie x
I will do that as i susspect my t3 is still rising.Iv just gotmonths supply,i wonder if GP will giveme a new prescription.
Don't wonder go back and demand a new script. It is not your fault that there is a significant difference in strengths between the two levo's or, like I have just said, reduce again.
Moggie x
Your right
I found the palps while I was on 100mcg MP intolerable. They were less intensive when I switched to Actavis but still a problem. Adding 25mcg T3 calmed them to the point they only happened an hour or so before dose was due, if I skipped food or lacked sleep.
I will change brands and see if it makes adifference, if not look at t3.
Then I would say that your problems are with your vitamin levels and not your thyroid levels. I was exactly the same and until I got my ferritin and vitd sorted my heart palps were constant. Your thyroid medication needs ferritin to work properly so until you get these sorted you will always have palp problems.
Moggie x
Im taking Vit d supplement now and will ask dr to check ferritin when i have B12 test. Thanks.
My GP and endo didn't sort my palps out I did it myself by gaining the knowledge I needed and putting it into action. If my doctor or endo had had their way I would be on beta blockers and wafarin now, which is not good news. I knew it was the thyroid meds that were causing this so I refused their sticking plaster approach, sorted my vitamin levels and then sorted my levo. The result is that I am now almost palps free (maybe once a month I might have an odd one or two).
Moggie x
Does that mean you purchase your own levo
Yes - I got totally fed up with the rubbish the NHS are making us take. You can't rely on the strength or the availability of our levo so I now buy my own and am happy spending £3 per week doing so.
Moggie x
A samll price to pay to stop these horrible feelings.
Yes but it wasn't just the change in levo it was correcting my ferritin and vitd levels that made a huge difference, the change in levo was just the missing piece of the jigsaw that slotted into place once everything else was put right.
Moggie x
Yes I would have waited for ever for GP to sort mine out too (beta blockers etc. prescribed but untaken - I found Kalms helped)
I sorted my own Vit D too (& B12) irons/electrolytes were OK - another one to check for irregular heart activity is Biotin (B7 Vit H coenzyme something) although usually seen as a culprit for hair loss, its also in Valerian (an ingredient in Kalms) J 
A couple of weeks ago at the doctors i asked about B12 as my last results were in 2012 and they were 246....i send they were on the low side and with thyroid disease people were better with higher B12 levels and quoted some research..i was shouted down and told that there wasno credable research. I was also concerned about my B12 levels because i have crohns disease and have had half my colon removed.
No credible research on B12! I'm sure there's loads on the PA sites, even farmers knew of cobalt deficiency in the 1930s!
A work colleague has had part of her colon removed too & is on regular B12 injections.
Are you taking your own supplements? e.g. B12 spray with B complex (I have drops).
3 GPs refused to test mine, until I did my own Active B12 test.
Then again they don't even bother to read warning letters from their Chief Medical Officer either, about Vit D - the CMO is now "ashamed at the rise in cases of rickets in the UK"
Why won't they recognise vitamins and minerals CAN be underlying causes of disease?
and boosting them up can at least help - do they know what pernicious means?
grr! J
Im not supplementing at the moment will wait for results if in range i will supplement if below range i will be offered B12 injections.
Maybe they dont want us to get well....its just a thought.
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