Well folks, I have my GP appt this afternoon. I am letting her know that a consultant at our hospital has contacted me (after I wrote a letter to the labs asking why previous requests for full thyroid screening have always been ignored) and said that if she puts the request by him, he will ensure the lab gives full tests on it
He is the consultant for Clinical Chemistry, and has said that she doesn't have to refer me to him directly, but that he will still give the request his attention.
I only realised I had not even had T3 tests done when I requested a copy of my records from the GP surgery later last year, and fear that the reason my diagnosis for Fibromyalgia was skewed because of this.
I went down the road of thinking I had PBC (which my mum died of) earlier last year as it also has the same symptoms as Fibromyalgia, and made a bit of a pest of myself at the surgery trying to get further tests, but had I known about the unrelyability of TSH testing, and the fact I had not had T3 or antibodies done, I would have gone down this route instead!
It shows just how flawed the system is. Now I have to convince the GP I am serious about this, when I have already been referred to in my notes as "hyperchondrical" and "wanting answers in the form of test results" - thankfully by a different GP, but when that GP is head of practice, and holds the purse strings, it is worrying.....
I have also compiled a chart showing my basal temps (mostly between 35.5 and 36 degrees) and am taking the Thyroid UK pack with me.
Wish me luck, and if anyone thinks that there is something I should include in my consultation, I hope to revisit the site before I leave for my appt in a couple of hours to pick that up.