ANYONE CLAIM PIP FOR hypothyroid and b12 diffency also ibs.

[antonia26]

Hi i just wanted to know if anyone as tried to claim pip with these problems or esa if so how did your claim go.

[Moggie]

Could you please make clear to our members what PIP and ESA is.

Moggie x

[helvella Administrator Thyroid UK]

I am not aware of anything that can be claimed merely on the basis of the named diagnosis. Isn't everything based on how they affect the individual? Point by point.

[antonia26]

Yes sorry pip is personal independant payment instead of dla ,esa is a social security benefit. I also meant by the symptoms you get from these illnesses like brain fog ,forgetfulness, muscle cramps and pain,headaches,extreme tiredness,pins and needles,etc.

[helvella Administrator Thyroid UK in reply to antonia26]

As I understand, you have to claim point by point and the combination of your symptoms and their affects on you could be assessed very differently to any other individual. Another person with the same headline diagnoses and even similar symptoms could be very much better off or worse off than you.

The only way to get the answer is to apply and see what happens.

(If you click on Reply to this then your response gets indented and the person you are responding to will usually get an alert email.)

Rod

[antonia26 in reply to helvella]

Ok thanks i didn.t realise that also when people say that have found they got throat nodules do they mean they have lumps on their throat on the outside and not in their mouth , i know it sounds stupid but i.ve read many threads but not got a clue on how they know . Just incase i ever develope them i.d like to know what to watch out for.

[Clutter in reply to antonia26]

Thyroid nodules will not be in your mouth. They'll be in &/or on your thyroid. Many people have one or more small nodules which will never cause them bother. They won't be visual on your neck until they swell or grow to a certain size. Mine had been compressing my windpipe making my voice hoarse and causing shortness of breath for some time. The lump appeared overnight on one side.

[Marz in reply to antonia26]

When you have your B12 results you may realise you are LOW and being optimal may help you to remove so many of the symptoms you mention. I think you were having the VitD test too.....

[antonia26 in reply to Marz]

Hi i didn.t have vit d test done they wouldn.t do it but my diabetic and b12 and thyroid was fine i.m told . Will make an appointment now with doctor cause even she thought i had it cause of my pins and needles so at a loss now on what is wrong ,it is constant pins and needles and my memory is terrible i also think i.ve done something when i haven.t . Only other thing is the levo i.m taking its only 50mg but it must be the cause , the doctor examined me and said i.m showing signs of nerve damage in my hands and that can.t be repaired also being refered to the bone doctor for the life if me i can.t think what he is called i know it begins with O. This is what i live like i forget names places objects and i have to try and decribe things to people what i.m talking about ,somedays are worse than others.

[Hidden in reply to antonia26]

If you have neuro symptoms caused by B12d (sounds like you do) then you should be on injections every other day until no further improvement (BNF section 9.1.2). Are you actually getting any treatment for B12d? It's not clear from your question. You don't have to live with this nerve damage and brain fog if you get the right treatment now. Check out b12deficiency.info

[antonia26 in reply to Hidden]

Hi my b12 has come back fine today so i don.t know what it is and can.t see my doctor until march 10th now i.m at a loss whats wrong with me even my doctor thought it was my b12.

[Hidden in reply to antonia26]

You need to get a copy of all your results from the surgery, being in range means absolutely nothing. If you have them post up the following full blood count (particularly MCV and MCH), B12, folate, ferritin.

[antonia26 in reply to Hidden]

Thanks they wouldn.t test me for anything else just b12 my thyroid and diabeties i phoned for them see and said doctor seen them and all fine . I.ve been on levo for 7 wks now as high antibodies . Do i need to ask doctor for print out of results or can i ask the receptionist. I thought it was b12 my doctor thought it was and my aunt who also just been told she has b12 dificency after they thought she had ms she was suffering same as me but worse .shes now on injections she is also a vegaterian i.m not.

[Hidden in reply to antonia26]

You must always get copies of all your results, never accept their word for it sadly. When you get them post them and we can help. Remember the b12 test is not very good and you could get some better tests done. Have a look around the website above.

[Marz in reply to antonia26]

You must go and get your results with ranges. I am sure you must have read on this site 100's of times - we cannot help unless you post your results with ranges. What your Doc thinks is fine probably isn't. They really do not know a great deal about ranges. They all need to be at the TOP of the range....being just in range is not good enough for you to feel well.

PLEASE try to make a list of things people on here suggest and make it happen.... If your Doc thinks it is your B12 - then it probably is. Have you looked carefully at the website that hampster2 gave you....full of helpful information....

[beaton]

These benefits are based on level of illness as Helvella said. I have hashimotos and psoriatic arthritis but was refused benefits.

[catalonia]

Hi Antonia, I've just sent off my claim for PIP (Hypothyroid and TED) I'm not holding my breath and I gather there is a 6 months backlog

If my claim is successful then at least I will be able to take some time off work without losing so much financially (I can't get SSP, only ESA) and maybe can buy in some help so I can manage the home and keep my job, I'm seriously struggling with doing both at the moment!

[antonia26 in reply to catalonia]

Hi i had my assessment pretty quick but it was a disaster i was then turned down and didn.t get any points for anything to do with my thyroid but 4 for my hearing problems . But in the mean time i got worse and was diagnosed with all my vitamins deficiency been refered to a neuro and been getting worse each wk. I.ve appealed like 6/7 wks ago i paid for a letter off the doctor to send to them aswell they are in no rush . I need to gluten free cause i do think i.m senseative to it i tried a day without gluten and felt so much better wasn.t as tired and no stomach problems but just can.t afford to buy gluten free food with my big family . I.m going to join the benefits and work site they are suppose to be really good to help with benefits as got a esa appeal going through aswell as husband lost is appeal and he suffers blackout regular and waiting for 2 operations wish i had joined earlier good luck anyway.

[LisaJoanneUK in reply to catalonia]

Hi Catalonia, I've been wondering about this myself recently, how did you get on with your claim?