I have had my first Endo appointment today and she did a physical examination on me.
Blood pressure - She noted my blood pressure was very low when lying down and the diastolic reading was higher upon standing than lying down. She also said she couldn't detect my heartbeat very well with a manual blood pressure monitor which did concern me although this could have something to do with the efficacy of a manual one.
Weight loss - She has said my weight loss isn't dramatic as in me going down 3 dress sizes but the fact that I do eat a lot and lose some weight hints at adrenal issues.
Skin hyperpigmentation - She has noticed some brown patches of skin on my back and legs and when she asked me if I knew about these I said no but the only dark patch I was aware of was on my right upper arm.
Blackouts - I did black out once before but it wasn't a *complete* blackout. What I mean by that (and I explained to her too) that I felt my thoughts cut out and my vision went hazy. I also came over tired. This only lasted 4 or 5 seconds but it was enough for me to notice.
So now I am to undergo an ACTH stimulation test as my symptoms seem to be pointing to Addison's. The Endo has said there is a link between Hashimoto's and other autoimmune illnesses and it would explain my symptoms.
My ACTH test is going to be booked quite urgently so they're looking at a week or 2 for me to have this done. I've heard that Hashimoto's and Addison's are linked to something called Autoimmune Polyendocrine Syndrome Type 2 (APS Type 2) but i've read that I would need to have:
And less frequently hypogonadism and vitiligo.
Well, out of the 3 I have Hashimoto's confirmed, Addison's Disease suspected and Diabetes ruled out with the HbA1c test.
Hypogonadism, I don't know about that although my breasts are very small for my age (they are a 32A, so nothing to brag about... ) and my periods are always heavy, painful, early, late, short and with dark blood. Plus I have lanugo hair on my lower arms and have excess hair on my thighs/bikini line, upper lip and chin (which I am always shaving off) I'm wondering if this might be something. Polycystic overies have been ruled out through ultrasound.
And vitiligo, I'm not very sure of as I do have white spots on my arms but these have not gotten any bigger, unilateral and aren't patches.
So now I'm stuck. Any advice would be greatly appreciated.