apparently i dont have thyroid issues - Thyroid UK

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apparently i dont have thyroid issues

mandy72 profile image
19 Replies

just had a call from the head of the diabeties dept about my complaint

the questions that were asked were routine

he appologised for coming across as rude

my thyroid was checked apparently

none of my symptons are thyroid related

further tests will be done

ive agreed to go see him again for blood test results in january but i wont sit and bite my tongue he will get what for if i feel the need im allso going to get hubby to come in with me

i feel like crying

edited to add if my symptons are not thyroid then someone somewhere is deffinatly crap at their job

the dr for diagnosing me

the lab for giving wrong blood results

endo for not knowing his head from his backside

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mandy72
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19 Replies
rosetrees profile image
rosetrees

Just a suggestion. Write down all your symptoms and give it to the doctor next time you see him. Ask him to put in writing, beside each symptom, an explanation of a) why he believes that symptom is not thyroid related and b) what he believes is the cause and his suggested treatement.

I wonder if he'd even be able to do that, let alone willing to do it?

mandy72 profile image
mandy72 in reply to rosetrees

good thinking

he is supposed to be arranging tests to see why i suffer with these not thyroid conditions

mandy72 profile image
mandy72 in reply to mandy72

should say that his reason for not being thyroid related was my last TSH was 5.2

rosetrees profile image
rosetrees in reply to mandy72

Then he's an *&^%*. I was horizontal in bed, too weak to stand, every inch of me shaking, lost my voice and couldn't breathe properly a year ago. My TSH was 5.6

mandy72 profile image
mandy72 in reply to rosetrees

if he fails me ill ask for another referral either to bristol or salisbury both good endos i just chose swindon as its my local hospital. I can think of a few names for him but im a lady so wont say lol

bantam12 profile image
bantam12 in reply to mandy72

BRI in Bristol have some good endos.

mandy-white profile image
mandy-white in reply to mandy72

I saw a really good endo in Salisbury

Clutter profile image
Clutter in reply to mandy72

Over 3.5 would get you a hypo diagnosis in most of USA. Mandy some people feel much better with their TSH around 1. Why can't these dim medics get it? Over prescribing is rightly abhorred (unless its ADs) but alleviating symptoms to allow one to feel well ought to be a priority.

in reply to mandy72

Hi Mandy

Scroll down the link here, from the BMJ. Clearly shows that anyone with a TSH level over 5 with symptoms should be offered treatment with T4. bmj.com/content/337/bmj.a80...

Your endo clearly needs to read up a bit!

Good luck

Liza

mandy72 profile image
mandy72 in reply to

thankyou

in reply to rosetrees

Good one!

shaws profile image
shawsAdministrator

These are some links which you may find helpful:-

thyroiduk.org.uk/tuk/thyroi...

thyroiduk.org.uk/tuk/testin...

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

mandy72 profile image
mandy72 in reply to shaws

thankyou

anbuma profile image
anbuma

I was told the same despite having thyroid symptoms and for the last 2 years everythign dismissed .just complained to hospital re ENT consultant who only told me "its not sinuses".but not what symptoms are.so the dr must be at fault for not telling him that I had had nasal problems for a year plus swelling and a rash.same with rheumy who only kept on about weight gain -dismissing that I had actually lost weight ,didn't/couldn't eat and didn't even consider my symptoms.i know this is not necessarily right to post this on thyroid forum but totally agree with you that doctors are nt doing their job properly.

mandy72 profile image
mandy72

he was reported to PALS if no joy next time i see him i will be taking things further

How do i contact Lyn Mynott?

Ooooh, I do feel for you. You expect the NHS to help and you've been failed by people who really need to find another job.

Inform your GP that you are dissatisfied following this hospital appointment,you need as much info as possible on your records. Demand an appointment with an Endo of your choice.

All you can do is keep putting complaints in writing, remember that GPs have revalidation so any complaints get bought up at this.

mandy72 profile image
mandy72 in reply to

im actually seeing the endo again on 13th january for blood results and then go from there

he obviously knows i wont take him talking to me like crap as a reporet has allready been done to PALS

if after the 13th im still not happy then ill ask for referral to Bristol as thats only about 30 min drive from me

mandy72 profile image
mandy72

ok thankyou

mandy72 profile image
mandy72

Salisbury is good for me too

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