Anyone get ringing in their ears/tinnitus? Is t... - Thyroid UK
Anyone get ringing in their ears/tinnitus? Is there anything that you do that helps?
Hi, yes a couple of friends have the same problem, told them about taking a good quality vit B complex you need to give it time but after a couple of months you will find it really gives lot of relief,one of the friends went privately to a specialist and b complex was the first thing he recommended , its worth a try, good luck ,eve
Thank you , I will try it. I had a head trauma, and for nine months my ears have been roaring. How much b complex should I take?
Hi have you had an mri on your brain, since the trauma. I had a Brain haemorrhage , 2.5 yrs ago and after surgery and 10 days hospital, had no problems then. Sadly 9 months later airbag went off straight into my head in car accident so another brain trauma for me, and a couple of months later my ears were playing up. Felt like pressurisation when you take off and land in an aeroplane, and the permanent sound of water in my ears! after meds from doc, it helped with the pressure and balance, but still have permanent noise. I do hate loud noise now and can't have people talking across me, too confusing. BI's can and do affect hearing and vision.
So go and talk to your doctor before you take anything, is my advice. Also check out Headway group.
Hope it helps.
I went to 2 neurologists, they could not help the ringing in my ears for a head trauma. I had it for 8 months. I don't know what to do. I am trying a b complex vitamin, 2 times a day. I wish I could get rid of this annoyance. The weird thing is, everynow and then the ringing is less loud than other days. Do you have an answer??? be well, David
Hi David sorry neuros couldnt help, my last OH and brother law from way back, both had tinnitus, never got any help either.
Have you looked at Headway Community and asked on there? Other than that, can't think of anything else, if I see something thT might help I'll let you know. Shirley.
Thanks will try that x
Try and get your levels tested first, before supplementing. Might be low enough the warrant treatment from the doc.
hi did the ringing start while taking medicine? ,mine started after taking statins
try b12 with folate
About 3 or 4 weeks but starting new job when not really well so might be stress. B 12 in middle of range but will try x
Hi everyone, my tinnitus is much louder on the left hand side. My head is full of noise, i can hear it over a loud tv. The last couple of days i've resorted to my hearing aid to try and de sensitive that ear. It has helped.
I'm going to try the B Complex vits. My B12 has been low 12plus years. Can't seem to tolerate the sublingual vit B. I need one without fruit flavourings. I have been using B12 patches, but unfortunately they haven't helped my tinnitus. Thanks for the advice. X
Here's one you could try, expensive but very concentrated so goes a long way:
yourhealthbasket.co.uk/inde...
Hi Hampster 1. Thank you so much for the suggestion. Have you tried it yourself? Just wondering how much citric acid is in there. At least there's no cherry flavouring which was a killer! So kind of you to respond. X
I haven't, but I was looking into it for my kids, it was recommended by someone on the PAS forum. Because it's so concentrated you just need a few small drops, so volume wise it's a lot less to ingest than other supplements. This is what she said about it:
"This gives 108 servings of 1385mcg methyl (5 drops, 30.5pence per serving) or 135 servings of 1108mcg (4 drops, 24.4pence per serving). The reason the bottle has much less in it is because you only use a few drops per serving rather than a full dropper as with your present bottle, meaning the methyl is much more concentrated in the above product."
That's really helpful Hampster, i'm going to give it a go! It may just be the answer to get some B12 in.
The sublingual ones with the fruit flavouring i ended up giving my daughter. It would helpa lot to be able to stick with this product. I used to get B12 on prescription for 10 years, but it was the rubbish stuff begining with cya, and only 50mcg, what on earth was that supposed to do? Thanks again!
Helen. X
What were they giving you that for? Why no injections?
Good question. I got sent to a dermatologist because i suddenly developed very dry skin and psoriasis in my armpits. She did some bloods and found i was very low in vit B. This was the same gp who ignored my sudden huge rise in cholesterol depression weight gain and fatigue. I finally insisted on a thyroid test and told it was the low end of normal. I wonder if this B12 will finally get rid of my enlarged tongue? I've had some very ignorant doctors over the years!
Do you have low folate as well? That can cause tongue issues. If you're going to take B12 make sure you get some folate. I originally got my very low levels up with bog standard prescription 5mg folic acid, but now I get 400mcg metafolin from my B-Complex:
breakspearstore.co.uk/produ...
This B12 / folate combo has 800mcg metafolin:
breakspearstore.co.uk/produ...
I also have issues with the capsule additives on supplements, they usually make me feel nauseous/worse. But I have found the Pure Encapsulations to be brilliant for me.
Have you ever considered pushing for B12 injections?
When it was last tested 4 years ago it was 80. God knows what it is now. I bleed into my urine and have had bleeding anal fissures literally, for a year now. I take Solgar Gentle Iron. Do i need folate supplements aswell?
I'll have a look at your links. X
Folate is different from iron. It's a B vitamin (B9), and is usually tested alongside B12. Which one was "80" 4 years ago? Have you had any recent tests for B12, folate and iron/ferritin?
Hi Hampster1, my folate was 80 which i thought was ok? No i haven't had any tests since. The endo said he'd test B12 and my bone health. Not sure when.
A ferritin of 80 would be good, but a folate of 80 would be way over the top of the range (usually about 20ish), are you sure it was folate? No matter what it was, it was 4 years ago, a lot can change in that time. So before taking any supplements I would recommend you ask them to retest ferritin, folate and B12. Or you can do these as home tests - I've just done the Myrios B12/folate finger prick test (£20) and the results came back to me in 2 days, very impressed.
From here you can buy the B12/folate test (use the discount code for 30% off) and the iron test (which measures ferritin):
myrios.co.uk/en/buy-online/...
But try and get your doc to do it first, they should be doing these routinely. It annoys me intensely that they don't.
H x
Hi H i had to ask last time using the knowledge i gained on this site. I shall push the endo. He was more interested in my bone health!
Thanks for the links i may well go down the diy route! X
I really would get tested first. You might need the injections, which would get your levels up a lot quicker, and be cheaper, than a lifetime of self financed supplements that may or may not work.
Here's the symptom list in case you haven't seen it:
b12deficiency.info/signs-an...
Antibody tests the Endo could do are Anti-Parietal Cells and Anti-Intrinsic Factor.
Hi Hampster, that is a very valid point. I think it's definitely genetic too, my eldest daughters B12 is always terribly low in the 100's. She had to put so much pressure on her GP who told her her levels were normal. She doesn't seem to store B12 and her GP just doesn't get that she'll need injections for life probably. He hadn't got a clue until she took him info the health problems caused by low B12. Thank goodness she can be mouthy like her mum lol. Unfortunately she was diagnosed hypo too last year, after a battle i might add with the same GP.
Well maybe we'll see you both over on the PA Facebook Group? It does tend to run in families so if your daughter is a sufferer, well then you could be too. Don't be fobbed off, demand those tests. I really hope she's getting regular treatment, being mouthy and educated is the only way with these hopeless GPs. Link to the Facebook Group here:
facebook.com/groups/1749289...
Thanks for the info Hamster. I've copied the page and sent it to my daughter.
I too am a sufferer of tinnitus, been like it for nine years.Have been to a support group, but haven't found anything that helps it. I do find if I am stressed or tired it's worse. Sleeping is the main problem as it's relentless at night. I have tried various things like relaxing music, wearing an ear piece which they gave me. I couldn't stand the ear piece as it was so uncomfortable and was just another buzzing noise. I was told there is no cure, wish something helped. Let me know if anyone has any ideas x
Lots of B12 has made mine almost disappear, but I need to take a lot. It took a month or so to help. If I reduce the B12, the ticking in my ears comes back and I get an under-eye tic, so there's definitely a relationship there.
I get tinnitus too, it seems to come and go - or maybe it is just that I notice it some times and not others. I take sublingual B12 because I was not far into the range. Not sure if it helps.
My son works in computing and finds all sort of weird and wonderful things, sent me this link - mynoise.net/noiseMachines.php think he was playing with it to block out background noise in his office - but I noticed you could use it for tinnitus too - and relaxation and all sorts of other things, you can even personalise it I played about with it last night and decided that it probably looks more complicated than it is.
Good luck, tinnitus is so annoying - says she typing away to a high pitched whine!
Liz
Interesting. I have tried dozens (or more) of the various sound generators that are available for phones, tablets and other computers. I keep finding one that seems better than all the others that have gone before - but in no time it is the second most annoying sound in the universe. 
(Second, of course, to my tinnitus.)
I find that the best sound source is Radio 4 - somehow the combination of human voices and topics which often have some interest or make you think a bit, seems more effective for me than anything else.
I have never found that B12 helps - but who knows, maybe I am wrong, or need more, or something?
Rod
Edited for clarity: B12 has been of great benefit to me - but not for tinnitus!
I agree, some of those things that are supposed to help are just so irritating, I once had a TENS machine for back pain and I hated it, not only did I still have the back pain but I also had the mini electric shocks and the stickiness from the pads. I gave up.
I have one of those lamps that wake you up gradually in the morning and that is great but it has a 'wake to birdsong or to a rippling brook' option which is incredibly irritating, the loop is so short that I was so tempted to leap out of bed and throttle the bird needless to say I abandoned the birds and the rippling brook and now I just waken up with the lamp and a bit of Classic FM on my husband's radio alarm.
Think I could probably use the site my son sent for relaxing / meditating though and it was fun to play with all the different noises.
Liz
LizH thank you very much for the link. It is A M A S I N G! And it really works! May I Ask you if it is not much trouble for you to forward me all those links for "weird and wonderful things" your son send to you. Having lupus I am quite restricted in my movements and PC is the whole world for me". My email is i16e17@yahoo.com.
Thank you again to you and your son
Irina
Hi I have tinnitus but mine is buzzing noise my left ear worse you ask your doctor about the tinnitus councing where they can give you a lot of help with relaxing theraphy and items from there catalogs hope that help sue
My tinnitus started 6 month on 75 mcgs levo. It's like an engine running all the time and it's in my left ear. I've recently started getting it in my right, but that's just like listening to my blood pumping round my body. I had an increase in levo to 100 mcgs in June. I take B complex plus B12 magnesium citrate and many others. I'm due for a blood test end of this month and will see the doctor, but i'm convinced it's a side effect of the medication as I didn't have it before the diagnosis.
I take 320 mgs of magnesium and if I'm being honest the buzzing comes on worse after taking it. I've tried half of this dose (as it's in powder form) and the tinnitus does improve somewhat, but on the negative side the muscle aches, fatigue and constipation come back!
I have to admit i do feel better on magnesium all round, but I may have to possibly try a different brand. Unfortunately I bought 4 tubs all at once, that's the pitfall of bulk buying!
Thanks for you responce
I'm trying Chelated as it's better uptake. Maybe mix alternately with current stocks? [Drs Best]
Citrate is good and cheap but may make bowels lazy over time as it's really a laxative at heart.
Have you ever had a test for Mag?
Mine was barely above the min, at 0.72mmmol/l [0.7- 1.0] after a years supplementing!
The serum level is not the whole picture, though! Mag. affects Calcium level, too.
No I've not been tested, but had calcium tested when first diagnosed and levels were good according to doc. I've been taking magnesium for many years for PMT (over that now) but magnesium oxide 250 mgs
I changed brands to citrate after reading it is better absorbed and that oxide isn't as good. I'm a regular gym goer and also believed magnesium is lost during excess sweating. I've read it's a difficult one to test for and like you said "the serum level is not the whole picture"
I've been reading Dr Peatfield book, and been following his protocol regarding diet and lifestyle and completely changed my diet in accordance and I'm feeling much better. I shouldn't need any supplements at all as my diet is so clean. A lot of the supplements he recommends have helped me get over the adrenal issues that come with taking levo
Because I'm feeling so well apart from the terrible tinnitus, which i'm convinced it is the mag citrate (I'll try chelated) I'll continue with the supplements for now.
Thanks tegs
For those of you that are really troubled by Tinnitus and/or Vertigo there is a specialist you can be referred to. He works out of Medway Maritme Hospital in Gillingham, Kent. He is Mr S.S. Surenthiran and the clinic is Neuro-Otology (Neurology for the Ear). It is only one of three centres in the country and is recognized nationally as a centre of excellence for the diagnosis and treatment of "Balance Disorders". Here is the link for more information:-medway.nhs.uk/our-services/...
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