I was diagnosed with Graves Disease in November 2012. I was referred to a Endo who started me on 40ug of carbimazole and then introduced thyroxine in February 2013 to begin a block and replace regime. I'm not sure when the eye problems started as I probably blamed the symptoms on tierdness, stress, working on a computer etc but I noticed lid retraction of my right eye in April. Since then my eyes have not gotten better but they haven't gotten worse. I only have lid retraction of my right eye and it's totally knocked my self confidence as my eyes look noticeably different I was just wondering if there is anyone else out there that is in a similar situation as me? What makes me feel even worse is that I'm getting married in 2 months time! I have no idea how long this will go on for or when my eyes may start to get better (other than me being told that it's a waiting game and it can take up to 2 years if not longer). I've seen an opthalmologist and all they've given me is phenylephrine hydrochloride 2.5% eye drops which lift my left eyelid for a short period of time. I've been taking selenium and avoiding environmental triggers but have not noticed anything helping very much. I've been told that as my TSH has risen to the normal range and my T4 is in the middle of the range that things should start to stabilise with both my thyroid and my eyes. I have not been stable since I was diagnosed and have fluctuated between being slightly overactive or slightly underactive. I'm hoping that finally now I will stabilise but not sure if that means that my eyes will start to improve or not. I've been told that the eye disease either runs concurrently with the thyroid problem or independently. I just don't know what to do anymore, I'm feeling pretty helpless. On the plus side my vision hasn't been affected and I'm hoping that it does not get any worse. I would love to get in contact with others who have had similar experiences or those that may have some advice they could give me.
Thank you very much, I appreciate all the help I can get.