Help, im scared!! MRI scan has revealed brain abnormalities, further tests needed!!

Hi, My consultant rang me yesterday with my results from recent MRI scan, which was done on my eyes and brain. It showed abnormalities in my brain, which I have to go for further testing!! Im very scared as I have Graves disease, thyroid eye disease, fibro and osteoarthritis in the spine. And had RAI in feb 2011, Ive had nothing but trouble with my health since RAI... has anyone else had this?

6 Replies

  • Angelherb

    I am sorry you have more worries with the result of your MR scan. I haven't had one so cannot give advice, except to support you. Anyone who has had similar to you will respond to your question.

    I hope you don't have long to wait before your next appointment and, hopefully, it will be soon. In the meantime, I know you will worry about your condition - that's only natural.

    I have hypo but Graves must be worse.


  • I assume your TED started after your RAI as surely no idiot would allow you to have that treatment with active disease. What treatment do you receive? Steroids? Prograf? Levo? Are your optic nerves undamaged?

    I'm also graves and TED so am feeling your pain xx I had nerve damage to a couple of areas in my brain but most of the damage has repaired since being "optimal" which was only achieve by having a TT. Really hope your endo & ophthalmologist get you well soon x

  • Thankyou for replying to my question/plea for help! Yes the TED started after the RAI, which the endo was not supportive of one bit! My own GP is very good (thank goodness) and she referred me to the ophthalmologist in Belfast, which I have been attending since 2011. He is very good, he treated me with steroids etc, but after 2 years he was concerned that I still double vision and puffiness in my eyes. So he sent me for the MRI, last Monday, so I was abit shocked that he rang on Friday(yesterday) to say, he will continue to see me, but the MRI showed up abnormalities in the left part of brain, and he then consulted a colleague, who is sending me a appointment to see him asap, for further investigations! I naturally asked him what could it be? He said he was not sure but wanted to personally ring me so I wasn't too alarmed when I get the letter... a few years ago I had 2 breast biopsies and had to wait 10 days on results, the waiting was awful, thankfully the tests were clear, but im stressed now waiting on this! It could explain the double vision and the dizziness, but more tests! Im also taking Levo for thyroid which is up and down like a yo-yo!!

  • Hello, I just wanted to tell you that I don't have what you have as I have Hashimotos BUT late last year I had a Brain MRI which showed up abnormalities called grey matter heteropia. Like you I was referred to a Neurologist and was told this was indicative of Epilepsy. I was sent for loads of tests plus another MRI to confirm the Heteropia. It was confirmed but the tests showed I didnt have Epilepsy and other tests all came back normal so the abnormalities turned out to be a red herring.

    I know its worrying but just wanted to let you know that sometimes things are not all doom and gloom and turn out ok. Try not to worry hopefully you will be ok too. x

  • The double vision is caused by the swelling in the muscles around the eyes squeezing them out of shape and increasing the pressure inside your eyes. The dizziness is part and parcel of the double vision. Your thyroid medication needs to be optimised - how are your numbers? Is your TED out of the active phase yet? Graves damage to nerve endings can be resolved :-)

  • I had my thyroid meds increased to 50mg a day, I have to get bloods checked every 6 weeks. The funny thing is I never put any weight on, which I expected to! And yes my TED active phase has calmed significantly. That is why consultant sent me for an MRI to see if any permanent damage, which thankfully didnt show any real damage. He said I will be still under his care for checks. Graves etc is a very strange disease, just seems to be endless health problems! As you pointed out, hopefully the brain abnormalities are nothing to worry about, just I have the odd wobble of what if? The last few years have been a struggle, I can only work part-time now and I'm also doing a part-time degree, so I try to keep going and stay active, I haven't told anyone about this as I don't like to worry anyone else, that's why I came on here. Thank you for your support I really appreciate it... here's hoping for good news...

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