At last! The doctor I have waited 18 years to find.....

[marmaris]

I told my doctor today who I have seen for the first time about my hypothyroidism that I have suffered with for the last 18 years. I told her why I had changed doctors due to the fact that I had requested twice to have my T3's done etc only to be let down by the labs refusing to do it. No feedback from them, even after taking in a letter of complaint and numerous phonecalls. I then told her what I had been going through, symptoms etc and on Levo only for 18 years. After getting quite tearful as I had been dreading no one listening to me again (you know what I mean there ladies don't you)? Instead she simply put her hand on mind and said, I do understand you Diane because guess what (wait for it) I am Hypo also! It was if the heavens had opened its portals and rained down a wondrous light on me. She is testing my T3's and all the other test's I asked for ie Ferrotin, B12, Iron,Vit D etc etc etc. Then she asked "Have you had your antibodies tested?" I could not believe it I was on a roll, she then of course mentionned adrenals and cortison levels. I could not believe this lady. She has even given me a prescription fo Eltrox as I said I was finished with Levo(never felt well on it). She then asked about my menstrual situation, and obviously due to my age (56), said I could even be Estrogen dominant, and said that my symptoms of chronic arm and neck pain (seeing a Neuro again after Cat Scan at the end of this month), probably sounds like Fibromalgia! It was just underbelievable. I do believe that things happen for a reason, she was the 3rd doctor of choice in the surgergy, I did not know any of them but the other two I requested were not available, so I agreed to see her. I cannot wait for all my results, and of course I will go and see her again when I get them. I feel I have know her before (I think you will know what I mean there). So just wanted to share this with you all to let you know that there is a light at the end of the tunnel, this has been proven to me after struggling all those years and them not listening to me and the same old "No further action your TSH is fine. Watch this space....... I wish you all the very best of help and sincerely hope that this will come your way too. Never give up, I wont.......x

[SilkyJ]

Fantastic! So happy for you. I hope you get on well with the T3. She may not give you high enough dose if she is concerned of suppressing your TSH too much but if she understands that this is the norm with T3, then you are extremely lucky to have found her.

Keep us posted!!

Silky x

[marmaris]

Hi Silky thanks for that. I have not received the T3 yet of course until I get my results back. My TSH is already supressed at 0.08 and she actually agreed with that, and that it was the best end of the scale to be. I will be very interested to find out what my T3 will be and my antibodies as I have always suspected Hashimoto due to the fact that I was hypo then Hyper on several occasions. Will keep you all posted. Marmarisx

[wightmouse]

So pleased for you, its what we dream of. Best of luck with your further treatment. x

[marmaris in reply to wightmouse]

Many thanks wightmousex

[Confused77]

That's wonderful, I'm so pleased for you. As you say, never give up!

[marmaris in reply to Confused77]

That's right confused, I think that you get to a point of no return and luckily someone has extended a hand of hope to me.

[Moggie]

As you said, everything happens for a reason and someone was smiling down on you when the other two doctors were unavailable.

Good luck.

Moggie x

[marmaris in reply to Moggie]

Hi Moggie, yes I truly believe that.....x

[Aurora-auspice]

Yay!!! Fab! Xxx

[marmaris in reply to Aurora-auspice]

Thanks Aurora-auspicex

[CarolineAnne]

Wow that's great Marmaris.

I'm sorry that you have struggled all those years. You shouldnt have had to! I just wish there were lots more good ones for everyone don't you??

Best wishes

Carolineanne x

[marmaris]

Hi CarolineAnne Yes I do wish that there were lots more good Doctors and I pray that it will all change and that something positive will be done about these situations, were people are left to strugglex

[carnation]

Good luck marmaris, hope all goes well for you now.

Carnation xx

[marmaris]

Many thanks Carnation (love the smell of pink carnations), will keep you all informed.x

[evey]

So pleased for you Marmaris, you must have felt as though you had won the lottery when you realised she was singing from the same hymn sheet. Good luck in your future partnership with your new gp. Keep us posted.

Evey.x

[marmaris in reply to evey]

Hi Evey yes it was just like winning the lottery and the even better thing is that she has it also in her family, her sister has it. So does mine and my Father what are the chances of that eh?x

[mitchell66]

follow

[marmaris in reply to mitchell66]

x

[Soldieress]

Hi Marmaris, Thanks for sharing your encouraging story. What a difference it makes to anyone if they actually have the same problem (as your new doctor did) or if they have a close member of the family suffering from the same thing. Is this doctor any where near Liphook, Haslemere, Petersfield or Portsmouth? If so, please could you let me know their name and surgery. Thanks

[marmaris in reply to Soldieress]

Sorry Soldieress I live in East Yorkshire, wish I could help, I will send you all good luck thoughts, don't give in there is someone out there for everyone, sometimes some of us have to wait that much longer...x

[rimington in reply to Soldieress]

Hi Soldieress, My Gp is in Liphook he told me my recent results were normal level. I was experiencing hypo symptoms again on 50 mcs, he agreed to send me for T3 bloods this time round and said I may have trouble converting. I went to Haslemere and had the bloods done I hope the lab has done t3 I await results. They have been good requesting B12 and vit d etc. I don't know if you have same surgery in Liphook

Regards

[Soldieress in reply to rimington]

Hi Rimington, thanks for your reply. I have Hashimoto's and hypothyroidism and have looked into it quite a bit over the last year (since I found out) but I live nearer the Portsmouth area. My Auntie lives in Liphook and has been hypothyroid for ages and had some nodules removed. I don't think she has ever asked for a copy of her results but still has a variety of symptoms. She goes to a surgery in Liphook but I need to ask her which one and the name of her doctor. I want to make sure she has the best possible care. I'm also interested to find out if she has Hashimoto's as I think at least one of her sons might have it. Which doctor and surgery do you go to? Thanks for your help

[rimington in reply to Soldieress]

Hello

I go to the Station road surgery. The receptionists are very good and have printed off copies of lab results for me. I feel that you have to ask the drs for tests and the reason why but they have been very accommodating. Best wishes

[Soldieress in reply to rimington]

Thanks

[Soldieress in reply to rimington]

Hi rimington, please let me know what tests the lab did in he end. Hope they do the one's you want and need. Best of luck

[rimington in reply to Soldieress]

Yes I will do they should be back now have an appoinment next week.

Best wishes

[rimington in reply to Soldieress]

Hi Soldieress

Yes lab did t3 appears ok. I have to take back what I said about the g.p. I think he was having a bad day he was a little off at the start. The usual story treats the TSH level had reduced me to 50 Levo and I started getting the symptoms back he tells me they could be hypo symptoms didn't answer when I politely asked why I didn't get them on the 75 or the 100 I had been reduced from. I am going to see a private endo at least I hope I can have a conversation about things .

I hope your aunt is well.

[Soldieress in reply to rimington]

Hi rimington,

thanks for the update. I hope you can get some answers from the endo. Best of luck

[ellarose1234]

When you look at the way this doctor dealt with you it makes you wonder if she is a member on this list???

I wonder if we do have doctors ???They could learn a lot and make themselves very popular couldn't they?

[marmaris]

So true, but she just seems so natural and having this disease herself she surely must feel that compassion for others because she simply knows what it is like. The interesting thing is that she is only taking Levo on 200mcgs. She said she was alright with that, it just shows you how we are all so different and not everyone does so well on the same drugs. Yes doctors would definitely be very popular if they were to come on this site, I think that they would find themselves inundated with new friends........x

[Soldieress]

Hi Marmaris,

As I was going through the question/blog? list from healthunlocked I noticed someone is looking for a good endo where you are. Please could you give her/him your details? it's near the bottom of the list (19 hours ago). Thanks The title is:

Info required on a Good Endo in East Yorkshire No answers

Hi Does anyone know of a good endo in East Yorkshire Thank-you

[tilly83]

that's fantastic.....pass her name around and maybe she can write article about woman and their thyroid, local regional press always interested in stories like that ....

[Anne-2]

That's great- I had a blood test on Monday and the results have come back as no action but I still think there is something not right with my meds ( 100mcg).

I would like to request other tests from my doctor but feel quite sure he will say no.

This hypothyroid lark is a real bummer, isn't it- even 25 years down the line, I still think doctors never seem to get it quite right when dealer with sufferers.

So glad you seem to have found a good one!

[marmaris]

Hello Anne so sorry to hear about how you are still suffering, and believe me I do feel your plight. I am still not out of the woods, and I cannot wait for my test results. I am hoping to get the T3 as like yourself Levo is a sure no no for me, even 18 years on. I think I would get more help from a smartie tube. Ask for those tests, if not change your doctor. I stuck with the last practice for no less than 7 years and when the did not do my T3's (for the second time, feeble excuses from the Labs), I said I am out of here. Will keep you all informed, and if I can help anyone from my outcome I will. Take carex

[callia]

so glad you have finally got a good doctor . similiar story to you diagnosed 17 years ago aged 26 , finaly after crying and begging my doctor end of last year i got an appointment with endo , although i had to mention t3 and vitamin d i finally got tested , now on 200 of levo and 20 of t3 plus 800 of vitamin d as that level came back at 15 .got another appointment on 3rd of may and i will be fighting to stay on this combination .

SO FOR ANY NEWBIES FIGHT FOR YOUR RIGHT TO SEE A SPECIALIST do not be fobbed off like i was for 17 years , as many gp's although good at their job just dont fully understand this condition

[marmaris]

Hello Callia your comments are welcomed. Will be getting all results next Thursday and can't wait to see what happens. What T3 are you on? I agree that a lot of doctors don't understand this condition and unfortunately when you have on general a 5 minute appointment there is not a lot you can do. Keep in touch. Diane

[Hidden]

Wow that is such good news! I'm glad to hear that people find success

[edysia2]

congratulations! truly happy for you. E xx