I caught a piece on the BBC Radio 2 Jeremy Vine show featuring Frank Skinner who was defending the concept of doing away with meals and taking pills.
So many advantages. I was long ago 'liberated from lunch' (thanks largely to IBS it seems and it's now doing its best to put me off eating at all other times), but why not go the whole hog?
OK, there are a few things that would need sorting.
I was shouting at the radio, maybe IBS sufferers tried to get through ......
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XDjames
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Do you find avoiding lunch helps you? I tried this but found I was ravenous by dinner time, ended up over eating and getting diarrhoea! I’d be delighted if they invented some Willy Wonka style pill for us sufferers!
The price is simply too high, my afternoon would probably be trashed, which is what I used to find. I got used to it, and really don't miss it, plus I don't have appetite. I used to ask for fruit at buffets so fruit is a possibility but I'm not bothered. Don't eat breakfast too early, dinner too late. By end of afternoon I might need to nibble something and take the risk. I don't have a massive appetite as long as I'm in flare (which seems to be all the time now) and I am losing weight gradually. Yes the price of eating for me has become too high.
l don’t understand why people are not able to eat normally even during flare ups. If you put the regime in place and you can live a fairly normal life! I have had lBS for 7 years and l am grateful to be able to manage the IBS most of the time without sacrificing the food and drink that l love.
I am trying really hard to eat normally, at least a good balance of wholesome stuff, but recently I have been struggling massively with the discomfort and pain. So I have spelt sourdough bread, nutribrex (someone posted on that recently, first time to try today), two small oranges for breakfast.
My wife is skilled in the kitchen and makes a big effort to cook wholesome food and I was going to wait for her to cook some more delicious wantons (Chinese dumplings) but it's been so excruciating today -I could barely think, hardly even listen to the radio it's been so overpowering- that I ate an early ready meal simply to force a BM and give me some relief. Wind plus visceral hypersensitivity dialled up to 11.
These days my sleep is massively disrupted: no sleep/pill/no sleep/pill/3hrs natural (yey!), permanent fatigue. It really takes the edge off eating for pleasure when you know what's coming next.
Living normally: I keep thinking IBS can't get any worse. I really miss these: going out to eat, to a show, visiting friends and relatives, going on holiday even a couple of hours drive away, going on trips for pure pleasure or enjoyable work (Zoom is a Godsend). My world has shrunk massively -not for good I hope, maybe tomorrow or next week it will all have gone away or at least backed off a lot. It happened around this time last year for a few months, and I had a really good time. It's not a one-way trip like some other horrors.
I used to drink wine and beer until about 6 years ago, nothing crazy but more than the reduced units limit, plus I was overweight (now under!) and that messed up my liver without me noticing it. So only a glass at Xmas. But you're right, plain water is the least harmful.
I feel your pain, it has to be something in diet? Two oranges in one go would be a digestive challenge even for those with cast iron gut, ( just an observation).
I definitely understand disruption to sleep, not sure doctors do though, amitriptyline helps with pain and sleep, anything to feel halfway normal must be a good thing ?
My best advise ( even though I haven’t really cracked the code myself) is avoid additives, including preservatives, sugar alcohols, sweeteners, gums,colouring’s etc if you drink things like squash ,don’t it’s full of rubbish , even most bread isn’t what you would expect, read labels .
Like you say a flare seems endless, but hopefully it will soon.
Well yes, thanks, being in the diet is kind of inevitable. Satsumas, and it's usually one!
Amitriptyline give me the most awful head the next day.
Yes, additives could be something to do with it. It's hard to escape some kind of additive unless you only use raw ingredients, but I do try to avoid and my wife implicitly understands this.
I have one word for this idea at my current stage of development...
Nope.
Reason? I struggle with balancing things but I basically just love food, eating, flavours, feeling my tummy happy with the food...etc.
It's only the next morning I may pay the price if I have made any reckless choices. Or even pay the price for simple bland non-reckless choices if my belly is having a hissy-fit anyway.
But while it's going down I enjoy it too much to give it up for pills. It always feels pretty good inside me...until the following morning.
But I can understand anyone who has a real battle with managing to eat ANYTHING, and wishing they didn't have to, to stay alive.
Pills certainly did help me when my diet was super restricted. Vitamin and mineral supplements and B complex. They stopped me getting deficiencies or scurvy etc.
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