bungi61

[bungi1961]

Is anyone like me on this forum really P****D of with this IBS/Divert Disease always spoiling our lives never knowing from 1 day 2 the next what the thing is going 2 do 2 you and never being able 2 try and eat drink afraid of every thing that goes into ourselves let alone what will come out the other end a prisoner 2 the house and toilet and when you try 2 see anyone Medical ( i.e Doctor ) and if you do get 2 see anyone they only give you 10 minutes as you can't really tell them all whats going on then 4 them just 2 give you more pills and potions and shoved out the door and watching these people on the TV able 2 eat what they like and yet if it's a Cancer Topic on there they get longer 4 interviews ( yes I had that well before this stuff ) but if you ring in with IBS stuff they just don't seem 2 care about us at all SORRY just letting off some steam but we don't appear 2 matter I have got my COVID/FLU jabs tomorrow and my tummy is in knots about it as I am scared not about the jabs but the fear of my poop problem again

[Purplewoman]

yep agree with all that!

[Mhl1]

Yes this is how I feel,I was 70 yesterday and didn’t have anything planned other than a trip to the local mall for lunch.But I woke up feeling rough in and out of the toilet and not sure when I was going to have to rush back in.So I didn’t actually make the decision to go until 2pm after taking Imodium.It wasn’t worth the trip or stress.My family have arranged a meal at a restaurant this coming weekend,I know that I won’t want to eat for several hours before,I will dose myself up with Imodium and dread the whole experience.Next week I also have a 30 min dentist appointment,covid jabs,flu jabs and a meet up with a friend.All of these will take me out if my comfort zone,I spend so much time crying,usually when my husband is walking our dog so he doesn’t notice.We have been married for 43 years and he has never understood my bowel issues,we rarely travel because I am frightened of having an accident,we went on a cruise last year to Norway and I only left the ship once,and that was because it was pouring with rain and my raincoat disguised all the padding I was wearing.

I feel I have let him down,but also myself,I have tried hypnotherapy,and even online CBT and I know if I could just change my mindset,things would be better.I feel so helpless.

[Boxroad in reply to Mhl1]

I know how you feel, I have not been out with my family since December 2016, my wife and I took our daughter and husband out for a meal for her birthday, the following year my ibs took a turn for the worse, where the diarrhoea decided it would be the main toilet routine. Just the thought of going out for long times makes me want the toilet. I also don’t like using public toilets as most of the time they are so filthy and got mess up the walls on the floor etc it’s horrible, why do people leave toilets in such a mess is beyond me.

[IBSNetwork Partner IBS Network]

So sorry to hear you're struggling. If you need support with your IBS, we are here. theibsnetwork.org

[Boxroad]

Have you started the rice diet yet? I book my doctors online and book a double slot, I also take them in a list/letter so nothing gets forgotten.

[Caroleb59]

I’m so sorry for everyone that is suffering with this horrible disease. My current flare up has been at least 3 months. I’ve switched to wheat/gluten free and dairy free diet, I’ve also discovered my body doesn’t like soya either. Di ce I’ve been doing this it is starting to settle down and I’ve had private appointments with a nutritionist/dietitian who has advised I stick to it until I feel I am better and the introduce one thing at a time to see what affects me. It’s boring and very restrictive as I already know that there are quite a few foods I can’t have besides these. Have you tried the low Fodmap diet, gluten dairy? You have to it consistently for quite a while but it might be worth a try to get it all to calm down. Have you been tested for diverticulitis? I have that as well! Keep going back to your dr, don’t let them fob you off, ask for a referral to a gastroenterologist.