Diazepzn: I was given Diazepam years ago by my... - IBS Network

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Diazepzn

Puffnstuff profile image
22 Replies

I was given Diazepam years ago by my doctor and are the only thing that help with my anxiety about going out with IBS. But when my old doctor retired the new younger modern doctors won't give them to me.Even though without them I can't live a normal life anymore as I get IBS everytime I have to go anywhere with fear of not finding a toilet.

I do not enjoy taking tablets and would only take them when necessary but am told they are addictive and can not have them. Makes makes so cross if I could buy them on line I would.

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Puffnstuff
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22 Replies
MyStar86 profile image
MyStar86

I was prescribed diazepam in hospital via a&e then continued long term post hospital stay on the gastro ward. My gp was difficult at prescribing them for ages but then I got multiple consultants (gastro and pain management) to specify that I needed them so now she has added them to my repeated prescription saves a lot of hassle but they won’t do it unless you get a gastro or a consultant to prescribe them. Also be warned they have diminishing effects when I had them in hospital they would knock me out and worked like a miracle drug but the longer you take them the body builds a tolerance to them so you need higher doses to have the same effects which is why doctors don’t like to prescribe them. I have remained on 2mg x2 daily for over 2 years now I was initially on 3x daily but the gp cut that down and is happy with my lower dose as I’m on the weakest form so it might be different if you want higher doses. It was a long battle to get these prescriptions every month it would be a nightmare but after the consultants said in letters that I needed them the gp had no issues so it’s worth speaking to your gastro or a pain management specialist. However I do not take them for anxiety I use them as a muscle relaxant as I have sphincter of oddi dysfunction but I was put on them before this was diagnosed. Good luck

Puffnstuff profile image
Puffnstuff in reply to MyStar86

Thank you. But sorry to hear of your problems, best wishes.

Daz1113 profile image
Daz1113

Go back and see your doctor and explain your concerns. Even if you do get addicted, at your age it’s not going to make the slightest difference. And if it helps your IBS then so be it. Failing that you can still buy them in pharmacies abroad. Like Kenya and Mombasa in particular. They used to be 5p each. Good luck.

Puffnstuff profile image
Puffnstuff in reply to Daz1113

Thank you, I am hoping for a follow up appointment anyway after my colonoscopy so I will see what the consultant says as she knows my problems.

Jackie1612 profile image
Jackie1612

Sorry to hear this.

If you don’t have any success getting a prescription, you might consider asking for a long-term antidepressant like sertraline. This helped my IBS

Puffnstuff profile image
Puffnstuff in reply to Jackie1612

Thank you, I know I have had a antidepressant in the past and it gave me terrible after affects. But I will certainly try to get something.

Yoga82 profile image
Yoga82 in reply to Jackie1612

Hi @jackie1612, I’m interested to hear how long it took for the Sertraline to help your ibs and what dose? I was put on Sertraline 4 weeks ago for anxiety and IBS. I’m yet to see any improvement, if anything my symptoms of anxiety and ibs-d seem to be worse! I’m aware this can happen in the first couple of weeks but thought after 4 weeks it would be easier??

Many Thanks

Jackie1612 profile image
Jackie1612 in reply to Yoga82

hi Yoga82

Sorry to hear that you are going through anxiety and IBS-D. Anxiety can be so difficult to cope with.

I am sorry, it is difficult for me to remember now, but I know I started on half a sertraline tablet. This did not do much, so after a while I increased to one tablet. It took a few months for me to feel the benefits.

I think I was taking sertraline for a couple of years. As soon as I stopped taking it, I noticed that the IBS – D got worse. Prior to that I hadn’t really noticed the improvement, but I really did after I came off sertraline.

fingers crossed that you feel better very soon

Yoga82 profile image
Yoga82 in reply to Jackie1612

Thank you

Lamly profile image
Lamly in reply to Yoga82

antidepressants don’t help in all cases.

Bloaty1 profile image
Bloaty1

how long have you been on them as they cannot stop them just like that

Puffnstuff profile image
Puffnstuff in reply to Bloaty1

I haven't' been prescribed them for years I am not taking anything at the moment but hoping they will consider given me something.

I’ve taken a very low dose of clonazepam as needed for over thirty years. Low means 1/4 of a .5 mg tablet. As needed means if I’m getting diarrhea from a stressful event (medical procedure, flying, etc). My gut reacts immediately with diarrhea to such events. There are times when I don’t need to take it for months; there are times when I need to take it more often. I’ve never had to increase my dose. The low dose is enough to cut that brain-gut connection. My gastroenterology nurse practitioner said it was perfectly reasonable to use benzodiazepines this way. Sure beats pooping in public! I’m sorry you’re dealing with unreasonable doctors.

Puffnstuff profile image
Puffnstuff in reply to Icanchangethislater

Wow, thank you so much for your replyYou know exactly what I'm going through then.

You don't know how much it means to me to hear I am not the only one with this. You are the first person I have ever heard has the same illness.

I have had this all my life.

Nowadays it is easier to explain this things to doctors so I hoping I can now get some help. Thanks again.

Icanchangethislater profile image
Icanchangethislater in reply to Puffnstuff

I know exactly what you’re going through and that’s why I responded. For doctors to outright deny the judicious use of life-altering medication is cruel. They can prescribe doses that do not lead to addiction. The best word I can use to describe what I feel like when I need to use clonazepam is NORMAL. If you need to private chat about this, I would welcome the exchange. Wishing the very best for you,

Puffnstuff profile image
Puffnstuff

Thank you and I would very much appreciate a chat if possible.

Chloeblue profile image
Chloeblue

I take diazepam for the exact same reasons you did. I have ibs which has affected my whole life. The very thought of going out places, travelling etc sends me into panic, then I can’t leave the loo. Diazepam for me is a life saver. I only take as and when. I take 5mg. I may not take one for weeks and then need 2 in one week. I stress this to my GP and she is fine with this. They are worried that it’s habit forming but not really when used responsibly. Good luck

Puffnstuff profile image
Puffnstuff in reply to Chloeblue

Thank you I'll post when I have seen the consultant. And see what she says about medication.

Lamly profile image
Lamly in reply to Chloeblue

most doctors won’t prescribe diazepam, I have it very severe but no doctor will give it out in my surgery, which means they would sooner you suffer and have no quality of life, I have taken them years ago and came off easily.

Puffnstuff profile image
Puffnstuff in reply to Lamly

Thanks that's exactly what I say.

Zantecat profile image
Zantecat

I think we all need to be on weed 24/7 , not that I’ve ever tried it , but at least it’s a natural substance 👍

Puffnstuff profile image
Puffnstuff in reply to Zantecat

I'm with you on that one, as long as there is no after affects

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