No support at school

[Savvahanna]

10 year old daughter with IBS, the school have sent my husband and I penaltys for the time she has had off and there is no support at school no wishes and feelings. Also when she has asked the school to call me when she is in pain they havent. Hospital appointment Thursday so hopefully get my beautiful girl help she deserves.

[FRreedman]

First concentrate on the hospital appointment, as your daughter's health comes before anything. When you see your IBS team, on Thursday, tell them about your daughter's school, and ask if you can have a letter explaining the symptoms and conditions under which she is struggling to maintain a "normal" lifestyle. When you have the letter from your IBS team, contact the head teacher and the chair of Governors and demand a meeting. Why are they penalising your daughter for a hidden disability? Why are they discriminating against her due to her hidden disability? Why have they not made changes to accommodate her hidden disability? If you require any further assistance you can contact CAB (Citizens Advice Bureau) or even come back on here and we can try to assist. Good luck and keep us posted.

[Savvahanna in reply to FRreedman]

Thankyou so much for your help, I thought I was over reacting or imagining things at first, this has been a long struggle for my daughter we are up 2 or 3 times in the night and very tired roll on Thursday x

[Stuart24]

Shocking and disgraceful. Do not pay anything. I personally would go in and give that school a verbal roasting that they would not forget. How dare they! You have enough to deal with and they have a duty of care towards your child that they are clearly failing in. If you don't get anywhere, a formal complaint to the LEA and Chair of the board of Governors copying the head-teacher.

[IBSNetwork Partner IBS Network]

We understand it's difficult. If you need information about IBS our website is a useful starting point theibsnetwork.org