Support Groups London/Surrey

[Dani09]

Hi all,

Since joining this site I am overwhelmed to hear how many of you unfortunately have similar symptoms or suffer from the same condition.

I have searched to see if I can find a support group where it would be nice to meet people in a similar situation or share the same experiences and haven’t had much luck.

I am based in Surrey just outside London, if anyone knows of any please let me know.

Thank you,

Dani

[Synbad]

Hi, yes I think there must be thousands of us suffering these symptoms & no one seems to know what to do about it & that includes the medical profession, had these symptoms for 7 years now & having spent a fortune on various stuff, had all the usual tests etc., thought might help, am no further forward & getting worse. I feel I am a disabled person with an invisible disability but cannot talk about it. Good luck everyone.

[Maureen1958]

Hi Dani, there is one in Kingston-up-Thames. Are you a member of the IBS Network. Maureen.

[Dani09 in reply to Maureen1958]

Hi Maureen, yes funnily enough I have just come across this network and they also have sessions in London. Have you been to the Kingston one?

[Maureen1958 in reply to Dani09]

Hi Dani, no I haven't been to the Kingston one, I go to the Alton one. Its slightly nearer for me.

Maureen.

[Dani09 in reply to Maureen1958]

I’m keen to go the the London one this week. Hope to meet as many lovely people as I’ve spoken to on here

[Maureen1958 in reply to Dani09]

I'm sure you will. Let us know how you get on. Maureen.

[Maureen1958 in reply to Dani09]

Hi Dani, I wondered if you have managed to get to the Kingston support group yet? If so how did you get on? Maureen

[Maureen1958 in reply to Maureen1958]

Sorry just noticed it was the London one you were trying to get to. But still interested in how you got on.

[Dani09]

Hi Maureen

I hope you are well

Yes I went to the London session, unfortunately I didn’t get out of it what I was looking but I’m on the right track and have an operation coming up so there is light at the end of the tunnel hope all is well with you?

[Seekingsalmon]

Hi there, where is the London one? I’m based in West London. Have been struggling with this for 15 years. Doctors don’t really seem to see it as an issue, just an inconvenience but for example, I’m in bed for the day after a bad attack yesterday. I feel wiped out and tearful that this is my life.

[Maureen1958 in reply to Seekingsalmon]

Hi, just noticed your query about the London IBS Support Group, it is in Kingston upon Thames. If you go to the IBS Network Website they have a section on their support groups. I happen to know they have a facebook page as I was making enquiries about it myself. I got the impression that not a lot a people were attending.