Constapation

[Tanky]

guys, AV had chronic constapation since last may, I have got FSH muscular dystrophy and arthritis mutalins. My bowl muscles don't contract anymore so been using suppositories for the last 2yrs until it got 2 the point it built up that bad it was up 2 my chest and right up the top of my back, a sat up 1 morning n it came out my mouth and thought a better see a doctor, anyways a had hospital wash outs and 2 small enemas and 26 big enemas and laxidos n bisicodle at night, a eventually gave in and went 2 hospital but got told my x-rays were full but they couldn't see anything wrong so a walked out cause they were gonny give me another wash out n 8 laxidos a day, a told them AV been doing it for 7 months now, the pain in my left side was like a severe stitch with severe pains shooting through it, in the past 19days AV had 4 picolax sachets n 8 laxidos a day in only 500ml of water and still just dihhorea, ma left upper side/stomach feels like a big lump but the Dr said it was gas and believe me AV blew enough gas out lol. Has anyone else ever had this, I just get 2 a certain bit maybe 2 days the other day without them n it started building up in ma stomach n back n when a breath in and out it was like a pluricy pain in the left lung, anyone got any ideas on anything else a can try????

Related Tags

enemaspicolaxintestinal and stomach conditions

[Tanky]

It's been 37 days on 8 laxidos a day

[Rozzy46]

I'm so sorry to hear of your awful problems. I don't know what else to suggest - can your medical adviser on your muscular dystrophy offer any help? How do other sufferers manage? Are you on any special diet? It sounds like you need to get cleared out and then try and find a system that will help you evacuate regularly which I think you've already done, but you need another approach. It must be very hard for you - don't despair - people do manage these problems - it sounds to me like you need specialist advice from a Muscular dystrophy doctor. Wishing you well - sorry I can't be of more help.

[Tanky in reply to Rozzy46]

Thanks for Ur reply, it's a very rare muscular dystrophy AV got and they don't know much about it, AV got a specialist nurse that phones me twice a year, there isn't nothing they can dobn the GI Dr a seen said that the main treatment will be a poo bag ( can't remember the name ). Am still the same with my bowls n a look 8months pregnant today again. I chocked on a chop in 2010 and the muscle on the right side of my throat has collapsed and blocked it so a cam only get food down the left side, my diaphragm has weakened leaving me with shortness of breath all the time, my contractory muscles in my throat and chest r weakening now. My left side is also weak down my whole body......don't think there's much hope for me growing a old lady, a just need a body bag now lol soz if a didn't laugh as cry xxx

[Eliana5]

Hi, I think I might be confused, as you have posted several posts on constipation and I'm trying to answer all of them. I don't know if you are getting my replies..so I guess I may make this short. The procedure is called a Colostomy, and the bag is called a "Stoma" or "Stoma Appliance". My next door neighbor has Ulcerative colitis. And has this. She is on medication, and seems to have no problems with constipation with the Stoma bag now. You mentioned..I can't remember which of your posts that you get called by a Doctor? This is not good..you are suffering, there is help and hope. First I would get a hold of someone in muscular dystrophy and arthritis and get a proper referal so you can get a good treatment plan. Don't stop calling these foundations, even talking to a supervisor if you have to or someone higher up. Do you have a case manager? They could help you with all of this, and help get you on a treatment plan, that might include the right medications, evaluations, diagnosis of your conditions and educate you further. This might include transporting you to a hospital or a special care facility. No one should have to suffer like this, and my heart goes out to you that you are not getting the attention and help you need for all that is going on. You need the right referrals. I'm hoping some way, somehow you can get a case manager to help you with all this. Do you have a trusted friend or family member who can help you obtain the best specialist and right treatment. Don't give up. There is help other than someone just calling you a few times. Please post back. Your post concerns me.

[Tanky]

Hi soz AV just seen this msge, because my muscular dystrophy and arthritis mutalins is the rarest and most severe ones that there isn't anything they can do but give me pain killers 2 try n help the pain a bit but nothing takes it away, sorry my msges are all different on different pages but am just trying anything 2 get some answers or diff suggestions. Av got 3 older sister and brother and we are all really close and 15 nephews, 2 neices, 23 great neices and nephews. I have got mental health problems so my sister's have to do alot for me n cum 2 appointments etc, as soon as I say I have BPD it's like a get treated like they think am kidding on how bad the pain is and wots going on, my family are raging abt how am getting treated .my stomachs still the same size so am gonny phone the docs the now 2 leave me a prescription for more picolax sachets and there happy to do it, AV been demanding a MRI for 3yrs now but still not been given 1, there saying it's just severe constapation, but with everything AV had for it I should have been cleared in 3 days but this has been a yr cumin this may when they said that it's a bloody joke likes, Al keep you posted if anything changes lol here's hoping but if u want to ask anything else feel free as I don't hide anything. I hope you understand me a bit better now lol xx

[Tanky in reply to Tanky]

I have also been with my partner for 22yrs at the end of this month x