Had enough : Hi I'm new here have been told I... - IBS Network

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Had enough

Lainey-47 profile image
24 Replies

Hi I'm new here have been told I have ibs suffering from constipation all the time also thinking of giving up food altogether as my stomach back are constantly on fire also there is some days I can hardly walk because of the pain I have at the bottom of my back and sides can anyone help as my doc can't asks what I think should be done I asked for a colonoscopy no joy

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Lainey-47 profile image
Lainey-47
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24 Replies
patientj profile image
patientj

I feel very sorry for you. Let's start from the beginning. When did your constipation start and do you have any idea what might have caused it? How did your doctor diagnose IBS - did he do any blood tests for instance? And what have you been given to help treat or manage your constipation and the pain so far?

Lainey-47 profile image
Lainey-47 in reply topatientj

I had food poison then helicobacter diaharea .

patientj profile image
patientj in reply toLainey-47

Food poisoning and gastrointestinal infections account for around 10 percent of IBS cases. There is evidence that the infection disrupts the normal functioning of the gut and scientists are still trying to understand exactly how. But we also know that infections, and their treatment, can sometimes really disrupt the microbial balance in the intestine. This can also lead to the symptoms of IBS. Therefore, things like high-strength probiotics might help (Align and VSL#3 are the two that I remember but others on here have recommended others as well). Equally, prebiotics, that encourage the growth of friendly bacteria, could be beneficial. And as others have said, it might be worth seeing a dietician as well. Have you tried keeping a food diary to see which foods make things more worse than others?

There are also a range of medications you can take. There are two types of laxatives on the market: ones that draw water into the intestine to increase the bulk of the faeces and thereby encourage defecation. The other, stronger laxatives, actually irritate the intestine to encourage it to move things along. Different ones work for different people and the NICE clinical guidelines have a good set of recommendations of which ones to try - nice.org.uk/guidance/cg61/c...

There is also a potential psychological/neurological aspect. Maybe your food poisoning has made you more wary of eating or enjoying food, and I would say you sound a little anxious about eating food now because of the pain you anticipate. There is evidence that IBS might be triggered by anxiety and depression, especially if happens alongside a gastrointestinal infection. And even if it isn't the cause, it can certainly be an exacerbating factor.

I would recommend talking to your doctor about the above and, like others have said, if you're still not seeing the results you need, then ask to be referred to a specialist.

Lainey-47 profile image
Lainey-47 in reply topatientj

Thank you I will try all of the above

Nesie237 profile image
Nesie237

Lainey-47, I totally understand about the pain and frustration. I have the same thing and it really limits activity. If you see a dietitian, she may be able to help with some tips. I saw one. She suggested a number of things. Two were taking an oral probiotic (I use VSL 3 which can be found on Amazon), and and Activia yogurt, which has probiotics in it. Taking them both daily helps. I'll have to get another colonoscopy soon also. The pain has been worse lately. It's a potential start. Good luck, Nesie 237

Lainey-47 profile image
Lainey-47 in reply toNesie237

Thank you

Nesie237 profile image
Nesie237 in reply toLainey-47

Sure. Good luck. Nesie237

Beezwax profile image
Beezwax in reply toNesie237

If you have a sympathetic GP, you can get VSL 3 on prescription. I take it and it definitely helps with constipation and bloating.

Nesie237 profile image
Nesie237 in reply toBeezwax

It does help. It's rather expensive, maybe a prescription would make it cheaper? Nesie237

marthaalice profile image
marthaalice

I think you should see a different doctor, nobody should suffer like you do. A dietitian is very good advice as is activia yogurt.

Lainey-47 profile image
Lainey-47 in reply tomarthaalice

Thank you

If you have already tried the diet trial, ie, seeing what works for you or not. e.g. plenty of bran and fibre in your diet to see if your bowels work when taking these, or adding s spoonful of liquid paraffin first thing in the morning and well as a cup of hot water from the kettle, I know it sounds daft, but having been born with lazy bowels I had to do this everyday! It worked most of the time. Also try taking anti cramp meds such as Buscopan for cramps. I take this when I start to feel the pain in my lower bowels or back. Dealing with the pain is half the battle won. Good luck.

O2ADDICT profile image
O2ADDICT in reply tolizwhitebillwhite

You drink liquid wax? Seems dangerous to me.

Lainey-47 profile image
Lainey-47 in reply tolizwhitebillwhite

Thank you

Its not wax, it is a medication for bad bowels. Doesn't taste nice, but it works. As your chemist.

Unataff2016 profile image
Unataff2016

Lainey-47 I feel ur pain !! Also newly diagnosed have not opened bowels for 6 days now have tried Senna laxido dulcolax plus more and Nadda. I've also tried plenty of strong coffee/ water orange juice and along with that my IBS meds no luck 😢 Anyone have any suggestions starting to feel nauseous now 🙃

246bindy profile image
246bindy in reply toUnataff2016

Try linseeds, a tablespoon before bed in a glass of water. Also try drinking a glass of water before getting out of bed in the morning.

Lainey-47 profile image
Lainey-47

Thank you

missymo profile image
missymo

Same here!! I did have a colonoscopy.which hurt like crazy for 2 weeks after!! Thickening of the bowel wall is what they came up with but no cure unfortunatley!!

Pat1 profile image
Pat1

I have chronic constipation I have been to private consultant and had the tests done. There are two new drugs that you can get on the NHS called Prucalopride and Linaclotide. The don't work like traditional laxatives, they work on the receptors in the stomach. Prucalopride was best for me. They should give it to you if nothing else works. It is on the NICE guidelines and you should say this to your doctor. Having said this I no longer take it as it is expensive and I was paying privately as I have private medical insurance, which covers everything else but not medication. What I take now is about 600 to 1000mg of magnesium citrate or oxide on an empty stomach before bed with lots of water. This works great, naturally and is effective. My colorectal consultant recommended it as well. Look up information on magnesium and constipation. If I don't take it I don't go.

There are other magnesium products for the colon that are excellent although more expensive but worth it. They are in order of my preference Oxypowder, Aerobic Mag07 and Colosan. You can get them on Amazon or a place called the Finchley clinic. They are very helpful and you can call for advice. Hope this helps.

Lainey-47 profile image
Lainey-47 in reply toPat1

Thank you

Lainey-47 profile image
Lainey-47 in reply toPat1

Hi have you ever had burning in your tummy and back also my sides are killing me especially my left in so much pain don't know where to turn had really bad bout of diahrea today need help doc said he will give me antidepressants looking for help

Pat1 profile image
Pat1 in reply toLainey-47

I don't have that mainly constipation with cramps. I take magnesium daily. This helps. I also take two Buscopan tablets if the cramps are bad.

hollypeg profile image
hollypeg

magnesium citrate taken daily helps me go otherwise i have terrible constipation and pain all around my abdomen , belt of pain as i call it , one a day , up it if im really struggling to 2 ,

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