I'm 64 and have had IBS for 3+ years which was misdiagnosed as Microscopic Colitis for the first year. This is my first time posting here. I am a widow and having a difficult time taking care of myself and the house. I can't go anywhere and cancel at least half of my Dr. appointments. My pain starts while I'm sleeping, anywhere from midnight to 4am. The pain is so intense that I have to talk myself out of calling 911 everyday. I do go to the ER which is right around the corner, but since I drive myself there, they can't help my pain. I've tried many of the new drugs, OTC medicines, acupuncture and the list goes on. I know this is nothing new for most of you. All of my tests & scans come back normal. I've been to 5 GI Drs. and they don't help. I was so bad that I had to have surgery to repair an anal fissure, a hemorrhoidectomy & a sphincterotomy. That's how much damage this disease can do. As a woman, I even have severe pelvic and vaginal pain. I swear, the pain is so bad and like others, I sweat and get nauseous. I thought I had IBS-C because I had to strain for anything to come out, but was told I have IBS-D because of how many times I went and the consistency. So, now I need to try another new, expensive drug when I can get to see my GI Dr. in 2 long months. I take one 10 mg Percocet every morning as soon as I can handle drinking water. I really need 2 pills a day, but so far no luck. Hopefully on my next visit to Pain Management, the Dr. will understand. I know they worry about addiction, but I'm not an addictive personality and I also get drug tested every month. The pain comes back, not as bad, but very uncomfortable. It even hurts to wear clothing below the waist. Also, I've lost most of my friends and family (the ignorant and uneducated) and that's why I have no help. My best friend that took care of me died suddenly 3 months ago. I'm on Social Security Disability and Medicare with supplemental insurance. I have no problem finding doctors, but so tired of them not knowing what to do with me. I usually know more than they do. I'm in So. CA. I'm desperate for help. I go to sleep at night thinking I won't wake up again. My parents are 94 and I haven't seen them in 3 years since I can't travel around the corner, let alone across the country. I'd rent a private plane if I could afford it. Should I start a GoFund Me account? Any help would be appreciated and I am truly sorry for all you IBS sufferers out there. Patti 😥
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