I am a 49 year old female who has suffered from IBS D since my early 20s. During that time I had good spells and bad spells but for about the last 10-12 years the bad spells lasted longer and longer until I finally reached the point where it had taken over my life and I finally lost the determination to keep fighting it. It was easier to give in and every time I went out was planned with military precision around where toilets were and I began to avoid going out socially. Just getting to work every day was an ordeal but I did have great support from the colleagues who were aware of my situation. I have had every test possible, almost every pill there is and tried endless diets. I spent a fortune on intolerance tests, which turned out to be nonsense, self help books, hypnotherapy, EFT treatments and was even referred to a psychologist. I had reached the desperate stage, it was excruciatingly embarrassing, I was beginning to feel like I was mad and in a vicious circle where anxiety made it worse, but the more "accidents" I had the more anxious I became. It was difficult to make anyone believe me that I wasn't stressed about anything else - only my situation.
At my last hospital appointment full of tears, yet another different consultant gave me his opinion. He thought I might have Coeliac disease despite the fact that 3 different blood tests had been negative, something he said was in fact a common result to the blood tests. The only conclusive test would be the camera down my throat, something I was very reluctant to undertake. The other suggestion was that things were worse since I had my gall bladder removed about 8 or 9 years ago.
As a stop gap to me plucking up the courage to go for that test he suggested I try Cholesagel. This is apparently quite expensive and the GP had to obtain approval to prescribe it. I was sceptical and not terribly hopeful but I cannot begin to tell you how much this has turned my life around. I have now been taking them for just about 6 weeks. I didn't find much difference for the first 2 weeks then went for 8 days in a row as what I can only imagine is "normal" for most people. I had one small blip on day 9 but have then been fine again for another 2 weeks. I know it is only just over a month but it is amazing to be able to leave the house in the morning without at least 4 trips to the toilet and then stops enroute. I feel like I have regained my life to a degree and feel back on top of the situation again. Today I even volunteered to go to a works Conference - normally I avoid anything that takes me out of my comfort zone.
I have never posted on here before but wanted to share my experience in the hope that it might help someone else who is feeling as desperate as I was and also to hear from anyone else who has tried this drug. This is still, in general, a taboo subject but so many people suffer in silence and I really was at the end of my tether.