Experiences with

Cholestagel

Hi just wondering if anyone with PBC has BAD and if they take Cholestagel

I had Radiotherapy for cervical cancer 16 years ago and have had gastro problems helped by cholestagel, urinary and vaginal problems too. Two months ago I had to have CT scans for investigation. I hadn't realised they were radiation based.

Finally I have been prescribed Cholestagel which I take 4 a day for 3 weeks now and no change. Am I going to need to diet to get rid of this massive lump or does it just take more time. Its really impacting my mental health now. would really appreciate some advice from others. x

Where do I go now, Cholestagel has given me my life back but for how long?

I am a 49 year old female who has suffered from IBS D since my early 20s. During that time I had good spells and bad spells but for about the last 10-12 years the bad spells lasted longer and longer until I finally reached the point where it had taken over my life and I finally lost the determination

I have just come back from a GP appointment to get some more cholestagel. He asked if I would mind speaking to a fifth year medical student and he left the room.

For the last 6 months or so I have been trying cholestagel, the lipid clinic told me take 2, but the GP only prescribed 1 a day. I did not like to argue that the patient information says starting dose is 6 a day, so I am not surprised that 1 didn't work, but I did not expect LDL to increase.

I just wanted to carry on taking cholestagel and forget about numbers, but he is now insisting I have another blood test to see if it is working. I just don't want to be obsessed with numbers any more and the worry that brings.

I have started on my bile mal-absorption treatment taking 6 tablets a day of what I describe as horse pills but the doctors call Cholestagel. I was also taking phosphate tablets but they caused untold damage to my backside. Yes John Terry saw more of me than it had done even on my worst day.

I have finally started on this. Had to go to my GP and he has prescribed 1 tablet (625 mg). I think this is because the lipid clinic told me 2 ! Alarmed to discover that some drug sites are saying you can take 6 a day. Could anyone tell me what dose they started on?

Anyway now going to try Cholestagel which has a local effect and not a systemic one..I'll see how I get on.