NG Tube: As my ibs has become severe and... - IBS Network

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NG Tube

shbowker profile image
9 Replies

As my ibs has become severe and effecting my ability to eat and so much pain my consultant has suggested a NG Tube and will have to go in hospital to have this done. Has anyone else had one of these?

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shbowker profile image
shbowker
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9 Replies
confused130170 profile image
confused130170

No sorry I've not been offered anything?

What is a NG tube????, have had all other tests, colposcopy? camera bowels,.

shbowker profile image
shbowker in reply to

It's a tube that goes down your nose and into your stomach and is left there in order to feed you and you don't eat x

Thankyou,,,, one learns every day,.

Patientwife profile image
Patientwife

Hi my husband has had an NG tube since August 2013. He suffers from Crohn's and had lost 4 stone in weight. Slowly but surely he has gained weight and is now 10 stone 12. He has just accepted the tube although every 3 months or so he has to see the nurse to have it changed and that isn't too pleasant but is necessary. In the August he had an appointment with the consultant, clinical nurse and dietician. Everything was explained in great detail and the tube was inserted. That evening we had a visit from the Abbott nurse. She sat with us for a couple of hours explaining how the machine worked, how to attach etc. I had a few practice goes and she made it clear that there was help 24 hours a day if needed. It is quite daunting but after a couple of days it became second nature and part of our daily life. One little tip I would give you is to ask for flesh colour plasters. When my husband first had the tube inserted the nurse used white plasters stuck over his nose and on his neck. I asked if there was something I could buy and she has kindly given us the flesh coloured ones since. I just ring the gastro unit and she leaves a supply in reception. people will stare but hey who cares so long as you are getting better. I have rambled a bit but I hope it has come across in a positive way. I am under no illusion that the tube saved my husband's life. Good luck !

shbowker profile image
shbowker in reply to Patientwife

Thank you for your response and info about your husband. I have lost 3 stone in weight and it's so hard to try and eat. This has been going on for two years now we're can't eat and severe pain and constantly been sick since May last year. I started with ibs when I was 15, but now am 32 and the worst it's ever been. I'm now 7 St 12 lb which isn't good as I'm very tall too so my bmi is 15. I'm sorry to hear that your husband has crohns. Glad to hear that it has helped him to put on weight and I hope it has helped to feel a bit better. I'm apprehensive about having this, it's the inserting of it that I'm not looking forward too. But I know it's really the only way forward. As with your husband probably felt so tired and drained all the time. Oh thank you I will ask for that. I can imagine people will look but suppose that's something I'll have to get used to. Good luck to your husband and thank you so much for your reply and kind wishes!

2Chrissie4 profile image
2Chrissie4

I have a jejunal feeding tube so that I can have overnight feeding via a Flocare Infinity pump. My type of tube only needs changing every 2 to 3 years or when there is a problem and I have it done as an outpatient in the Gastroenterology Endoscopy Unit. From past experience including having an NJ tube fitted as an outpatient was unpleasant at the time hut neccessary. Having an NJ was quite quickly put in, only a few minutes so don't worry.

Kjr150166 profile image
Kjr150166

Hi. Yes I've had one. I've got pancrestis and to give my pancreas a rest I had and ng tube. It goes in with the endoscopy camera so u don't feel it really. The only bit I felt was getting it from throat to nose. Then u just hook yourself upto a feeding bag. You will/ should be taught how to use machine and set up food. I was on it for 9 months. I used to have mine on at night so free in the day. But then I got a back pack so fed during the day and then could sleep at night. Hope this helps. Good luck x

Robyns profile image
Robyns

Hi has the Ng helped you as I’m going through the same issues I’ve been told I’m having a dietician to start be with foods from scratch then I have to update my consultant to see if it doesn’t work but I’m in so much pain and feel sick every time I eat.

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