I have an 11 year old daughter who has Downs Syndrome. Unfortunately over the past year she has required several antibiotics for various infections which have severely upset her insides. Besides 4 hospital admissions since September, a recent test has shown she is Fructose Intolerant. I always felt she was but was never told this test existed! Shame! How bad the damage is I cannot tell you. All I can say is she is only able to tolerate boiled and baked foods with no fats or sauces added. No soups and no fibre either! After taking my sweetie swimming on Sunday, she had terrible abdominal pains and diarrhea because she'd swallowed some of the pool water!!
I feel the hospital are going very slowly with her. She is under the Paediatric Gastro Team but I won't disclose the hospital so as not to shame them - yet!
I'm doing all I can to ensure my child is healing however, not being a medical professional and unknowing what else is going on inside is very worrying as she simply continues her daily bland diet of dry white toast, plain white pasta, white rice and boiled potatoes. And on good days, hard boiled eggs, tinned tuna (in water) and plain white fish and if lucky boiled chicken.
Does anyone recognise any of this? If so, please be in touch.
The constant problem has been ongoing diarrhea when trying to introduce other foods, always starting with very small amounts of boiled broccoli/cauliflower/courgettes.
Any ideas or help out there please? Don't have the money to go private ):